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2 Be Me 800 395-LOOK www.2bme.org Helps teens cope with the physical, social, and lifestyle challenges of cancer. Tips on skin care, hair, makeup, nutrition, exercise, fitness, and social issues.
2Young-4Gyn-Cancer 2Young-4Gyn-cancer@listserv.acor.org Support community for young women who have gynecological cancers.
AARP 888 687-2277 toll-free www.aarp.org Organization for people age 50 and over dedicated to enhancing the quality of life with information, publications, advocacy, and support. AARP Tax Aide of Marin County dongreg@sbcglobal.net Free tax preparation service for low and middle income taxpayers of all ages in Marin. Offered from February 1 through April 15 each year. Abby Caplin MD San Francisco, California www.abbycaplinmd.com Dr. Caplin specializes in mind-body medicine and offers writing workshops which incorporate guided visualizations, meditations, coping skills, strategies for healing. About Cancer www.cancer.about.com Current information and resources. A Cancer Survivors’ Almanac: Charting Your Journey Barbara Hoffman, editor New York: John Wiley and Sons, 2004 This book contains information on employment discrimination, health insurance, financial planning, communicating with family and friends, and advocacy resources. To order a copy, visit National Coalition for Cancer Survivorship at www.canceradvocacy.org. Accent on Health Boutique 625 Steele Lane Santa Rosa , California 95403 707 571-8842 www.accentonhealthboutique.com Mastectomy forms and bras, post-operative garments, custom-fitted compression garments for lymphedema, wigs and head coverings.
Access Project 866 918-5232 www.accessproject.org Provides advice on medical bill arrangments and negotiation strategies.
Access to Benefits Coalition www.accesstobenefits.org Information for Medicare beneficiaries about additional programs that may benefit them.
Action to Cure Kidney Cancer 212 615-6404 www.ackc.org Grassroots organization to raise awareness and to advocate for public and private funding for kidney cancer research. Acute Liver Failure Support Group 800 292-9099 ext. 15 toll-free 925 580-5336 Meets quarterly, by phone and email, to provide personal connection and information to those who have experienced a liver transplant due to acute liver failure.- Sequoia Hospital Health and Wellness Services
- 749 Brewster Avenue
- Redwood City, California
- 650 367-5998
- Oakland
- 5323 Foothill Boulevard
- Oakland, California
- 510 434-0307 ext. 308 Donna Hatch
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- Quan Yin Healing Arts
- 455 Valencia Street
- San Francisco, California
- 415 861-4964 Mark Sorensen
- Liver Transplant Support Group
- California Pacific Medical Center
- 2351 Clay Street, 3rd Floor, Boardroom
- San Francisco, California
- 415 600-1035 Marjorie Davis
- Lucille Packard Children’s Hospital
- Ground Floor Cafeteria, Dietary 2
- Stanford, California
- 650 498-5428 Lisa Wolcott
- 505 Parnassus, Long Solarium
- San Francisco, California
- 415 353-1040
Acurian 866 566-5966 toll-free 215 323-9000 www.acurian.com Provides the most current information on clinical trials and new drug therapies. Adopt a Family of Marin 1930 Fourth Street San Rafael, California 94901 415 456-7805 Financial assistance and emotional support to low-income families with dependent children including security deposits, rental assistance, childcare subsidies, car repair, and help with food, transportation, and other daily needs.
After Breast Cancer: A Common-Sense Guide to Life After Treatment Hester Hill Schnipper, Lowell E. Schnipper New York: Bantam Books, 2003 A Guide to Survivorship for Women with Ovarian Cancer F.J. Montz, Robert E. Bristow, Paula J. Anastasia Baltimore: Johns Hopkins University Press, 2005 Air Charity Network 877 858-7788 toll-free www.aircharitynetwork.org Access for people seeking free air transportation to specialized health care facilities. Formerly Angel Flight America. A Lady’s Touch 612 D Street San Rafael, California 94901 California Pacific Women’s Health Resource Center 3698 California Street San Francisco, California 94118 415 454-6058 Offers breast prostheses, bras, post-operative camisoles and slips, synthetic and human hair wigs, turbans, hats, scarves, and jewelry.
Alicia Rose Victorious Foundation 856 784-0615 www.victoriousfoundation.org In-hospital psychosocial support programs such as donation of games, movies, TVs, music, computers, and more.
Alliance for Prostate Cancer Prevention 888 502-7227 toll-free www.apcap.org Brings public and private business leaders, legislators, health providers and administrators, researchers, federal, state, and local health officials, and prostate cancer advocates into a coordinated forum to promote awareness, education, research, and primary and secondary prevention programs. Goal is to eliminate prostate cancer as a health threat in the U.S. by 2015. AMC Cancer Research Center 800 321-1557 toll-free 303 233-6501 www.amc.org Research institute dedicated to prevention and control and better therapies and patient care.
American Academy of Dermatology 866 503-7546 toll-free 202 842-3555 www.aad.org Committed to excellence in patient care, medical and public education, research, professionalism, and service and support. American Academy of Hospice and Palliative Medicine 847 375-4712 www.aahpm.org Dedicated to excellence in and advancement of palliative medicine through prevention and relief of patient and family suffering. Provides clinical practice standards, fostering research, facilitating personal and professional development, public policy advocacy. American Academy of Medical Acupuncture 323 937-5514 www.medicalacupuncture.org Promotes integration of traditional and modern forms of acupuncture with Western medical training to create a more comprehensive approach to medical care. American Academy of Pain Management www.aapainmanage.org Interdisciplinary organization serving clinicians who treat people with pain through education, setting standards of care, and advocacy. American Association for Cancer Research 866 423-3965 toll-free 215 440-9300 www.aacr.org/survivorsandadvocates The oldest and largest scientific organization in the world focused on high-quality, innovative cancer research and advances in the causes, diagnosis, treatment, and prevention. American Association of Oriental Medicine 866 455-7999 toll-free 916 443-4770 www.aaom.org Promotes excellence and integrity in the professional practice of Acupuncture and Oriental Medicine, in order to enhance public health and well-being.
American Bar Association Commission on Women Breast Cancer Legal Initiative 312 988-5715 www.abanet.org/women/breastcancer.html Empowers women by developing a clearinghouse of information and resources to help breast cancer patients protect their legal rights. American Brain Tumor Association 800 886-2282 toll-free 847 827-9910 www.abta.org Funds research and provides information to help patients make educated decisions about their health care. Listings of physicians, treatment facilities, and support groups throughout the country. Offers a free publication A Handbook for Family Caregivers of Patients with Brain Tumors. A limited selection of Spanish-language publications is available. American Cancer Society 800 227-2345 toll-free 404 320-3333 www.cancer.org A nationwide, community-based volunteer health organization. Supports research, provides printed materials, financial assistance, and conducts educational programs, including: - Cancer Survivors Network
- www.acscsn.org
- Live online chat sessions, virtual support groups, pre-recorded talk shows, and personal stories.
- Hope Lodges
- Free temporary housing facilities for cancer patients who are undergoing treatment and their families. Provide private rooms, kitchen facilities and, in some locations, transportation to treatments. Accommodations and eligibility requirements vary by location. Call ACS to learn more about a specific facility.
- Look Good … Feel Better
- 800 395-5665 toll-free
- Free program that helps women deal with appearance changes from cancer treatments. Group programs, one-on-ones, and self-help kits. Offers a self-help brochure for men on appearance-related side effects of cancer treatment.
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- Reach to Recovery
Trained volunteers support patients through face-to-face visits or by phone before, during, and after treatments.
- "tlc” Tender Loving Care
- 800 850-9445 toll-free
- www.tlcdirect.org
- A “magalog” (magazine/catalog) of helpful articles and products for women coping with cancer treatment. Products include wigs, hairpieces, breast forms, prostheses, bras, hats, turbans, swimwear, and accessories.
American Cancer Society 750 Lindaro Road #120 San Rafael, California 94901 415 454-8464 www.cancer.org A unit of the national volunteer health organization. Co-sponsors support groups and one-on-one peer support. Offers referrals to community resources and access to funding for home care services. Free services and support programs including “Look Good … Feel Better” program, wigs, hats, scarves, and prostheses, transportation to and from treatments, Cancer Survivors Network, one-on-one peer support program.
American Cancer Society Asian Pacific Islander Cancer Education Materials Tool www.cancer.org/acmmain Links to web sites that have cancer education materials in Asian and Pacific Islander language. American Cancer Society’s Complete Guide to Complementary and Alternative Cancer Methods Atlanta: American Cancer Society, 2006 American Cancer Society’s Guide to Pain Control: Understanding and Managing Cancer Pain Atlanta: American Cancer Society, 2004 American Cancer Society’s Healthy Eating Cookbook Atlanta: American Cancer Society, 2005 American Cancer Society Young Cancer Survivor Scholarship Program in California 800 877-1710 toll-free 800 227-2345 toll-free www.cancer.org/scholar Provides $5,000 scholarships for cancer survivors diagnosed before the age of 18 who are 25 years old or younger. Applicants need to demonstrate financial need, plan to attend a 2 or 4-year accredited undergraduate institution of higher education in California, and have a minimum GPA of 2.5 on a 4.0 scale. Recipients are required to serve a minimum of 25 volunteer hours with the American Cancer Society.
American Chronic Pain Association 800 553-3231 toll-free www.theacpa.org Peer support and education. Raises awareness among the healthcare community, policy makers, and the public about living with chronic pain. American Gastroenterological Association 301 654-2055 www.gastro.org Advances the science and practice of gastroenterology. Founded in 1897, the AGA is the oldest medical-specialty society in the U.S.
American Holistic Medical Association www.holisticmedicine.org Mission to transform healthcare to integrate all aspects of well-being, including physical, environmental, mental, emotional, spiritual, and social health.
American Hospice Foundation 800 347-1413 toll-free 202 223-0204 www.americanhospice.org Improves access to quality hospice care through public education, professional training, and advocacy on behalf of consumers. Provides training for school professionals and employers on grief issues. Offers tools to help hospices reach out to their communities. Researches consumer needs and preferences in end-of-life care. American Institute for Cancer Research 800 843-8114 toll-free 202 328-7744 www.aicr.org Information about cancer prevention, particularly through diet and nutrition. A toll-free nutrition hotline, a pen-pal support network, funding of research grants, and consumer and health professional brochures, plus health aids on diet and nutrition. American Kidney Fund 800 638-8299 toll-free www.kidneyfund.org Serves people with or at risk for kidney disease through direct financial assistance, education, clinical research, and community service programs. American Liver Foundation, Northern California Chapter 800 292-9099 toll-free 415 248-1060 www.liverfoundation.org Research, education, and advocacy for those affected by cancer, hepatitis, and other liver-related diseases. The Northern California chapter raises money through special fundraising events, private contributions, and foundations to support liver wellness education and information. American Lung Association of California 800 586-4872 toll-free 510 638-LUNG www.lungusa.org/california Provides lung health information and resources, including information on smoking cessation. Message board where individuals can share their experience. American Medical Association 800 621-8335 toll-free www.ama-assn.org Leading advocate for physicians and their patients, always working to improve America’s healthcare system.
American Pain Foundation 888 615-7246 toll-free www.painfoundation.org Improves the quality of life of people with pain by raising awareness, providing information, promoting research, and advocating for access to effective pain management. American Pain Society 847 375-4715 www.ampainsoc.org A multidisciplinary community of clinicians, policy analysts, scientists, and others dedicated to increasing the knowledge of pain and to transform public policy and clinical practices to reduce pain-related suffering. American Physical Therapy Association 800 999-2782 toll-free 703 684-2782 www.apta.org Mission is to further the profession’s role in the prevention, diagnosis, and treatment of movement dysfunctions and pain disorders. American Psychosocial Oncology Society 866 276-7443 toll-free 434 293-5350 www.apos-society.org Helpline for patients and advocacy organizations to obtain referrals for local psychiatrists, psychologists, nurses, social workers, and counselors skilled in the management of cancer-related distress. American Society of Breast Disease www.asbd.org Advocates a multidisciplinary team approach to breast health management, disease prevention, early detection, treatment, and research. American Society of Clinical Oncology Online 888 651-3038 toll-free 703 519-2927 www.asco.org Addresses issues about survivorship, resources, finding an oncologist, late effects, advocacy, and cancer policy issues.
American Society of Hematology www.hematology.org Furthers the understanding of diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic, and vascular systems. Promotes research, clinical care, education, training, and advocacy in hematology. American Urological Association Foundation 800 828-7866 toll-free 410 689-3990 www.UrologyHealth.org Supports research, provides education, and offers support services for those who have or may be at risk for urologic cancers (i.e., bladder, urinary tract, prostate, kidney, penile, testicular). Offers the Prostate Cancer Resource Guide with information on diagnosis, treatment, and support resources. Some Spanish language publications are available. Americans for Better Care of the Dying 707 647-8505 www.abcd-caring.org Seeks to achieve substantive health care reform through improved pain management, better financial reimbursement systems, enhanced continuity of care, support for family caregivers, and changes in public policy. Amgen Reimbursement Connection 800 272-9376 toll-free Medication assistance Amschwand Sarcoma Cancer Foundation 832 367-9474 www.sarcomacancer.org Educates the public about sarcoma cancer, encourages research, and provides support for persons affected by sarcoma. Anderson Network, A Program of Volunteer Services 800 345-6324 toll-free www.mdanderson.org Matches people with others with same diagnosis for support. Andrea Fox Fund San Francisco Bay Area, California 415 507-2578 Supports local projects that focus on outreach and support services for breast health, breast cancer education, early detection and reduction of late stage diagnosis, and a diagnostic funding program for women under 40. Andre Sobel River of Life Foundation 310 276-7111 www.AndreRiverOfLife.org Enables single parents of children with life-threatening illnesses to care for their children full-time by relieving financial burdens. Anita’s Salon and Scalp Clinic Mark Wise for Wigs Livermore, California 925 455-4998 Offers wigs and head coverings. Home and hospital visits can be arranged. Certified as part of American Cancer Society’s Look Good …. Feel Better program. Maintains a wig bank for patients that cannot afford to purchase wigs. Asian Advocacy Project of Marin 2915 Kerner Boulevard, Suite A San Rafael, California 94901 415 259-0178 Empowers Asian community so that it can fully and actively participate in the health education, economic, social, and political processes of the society.
Asian American Cancer Support Network 650 967-2305 www.aacsn.org Provides educational, supportive, and a diverse network of resources for Asian Americans affected by cancer. Asian & Pacific Islander American Health Forum 450 Sutter Street, Suite 600 San Francisco, California 94108 www.apiahf.org Promotes policy, programs, and research efforts to improve the health and well-being of Asian American, Native Hawaiian, and other Pacific Islander communities.
Asian Health Services 818 Webster Street Oakland, California 94607 510 986-6830 www.ahschc.org Advocates for the Asian community regarding its health rights and to assure access to healthcare services.
Association of Cancer Online Resources 212 226-5525 www.acor.org A collection of online communities provides timely and accurate information for patients, families, friends, researchers, and physicians. AstraZeneca Patient Assistance Program 800 424-3727 toll-free Medication assistance Avastin Patient Assistance Program 888 249-4918 toll-free Medication assistance
A-Z Medicine & Me 800 957-6285 toll-free Medication assistance Battling Prostate Cancer: Getting from “Why Me” to “What’s Next” Marvin A. McMickle Valley Forge, PA: Judson Press, 2004 Bay Area Jewish Healing Center 3330 Geary Blvd. San Francisco, California 94118 415 759-4197 Provides Jewish spiritual care to those living with illness, caring for the ill, and the bereaved through direct service, education and training, and information and referral. Bay Area Legal Aid 30 North San Pedro Road #245 Marin Justice Center San Rafael, California 94903 800 551-5554 toll-free Largest provider of free civil legal services in the Bay Area. Assists people in the areas of housing, public benefits, health access. Bay Club Marin 220 Corte Madera Town Center Corte Madera, California www.bayclubmarin.com
Benton Medical Mountain View, California 888 989-3338 toll-free 650 625-1000 www.bentonmedical.com Provides breast care products, bras, and lymphedema garments. Be Prepared: The Complete Financial, Legal, and Practical Guide to Living with a Life-Challenging Condition David S. Landay New York: St. Martin’s Press, 2000
Beyond the Cure 800 5-FAMILY toll-free 314 241-1600 www.beyondthecure.org Helps childhood cancer survivors integrate their experiences into their new lives as survivors and successfully handle the challenges ahead of them and to celebrate survivorship. Today, there are 270,000 adult survivors of childhood cancer, many of whom will develop “late effects” as a result of diagnosis and treatments. Curing the disease is simply not enough and the focus must shift to a continuum of care that lasts a lifetime. A program of The National Children’s Cancer society. Bischoff’s Medical Supplies 1635 Divisadero #105 San Francisco, California 94115 415 921-0440 www.bischoffsmedicalsupplies.com Distributor of custom vascular support garments, compression lymphedema pumps, and post-mastectomy products.
Bladder Cancer Advocacy Network 301 215-9099 www.bcan.org Raises public awareness, advocates for funding for research, and provides clinical trial listings, a quarterly online newsletter, and a weekly online chat room. Bladder Cancer Web Café www.blcwebcafe.org Information on current treatment options for bladder cancer. Blood and Marrow Transplant Information Network 888 597-7674 toll-free 847 433-3313 www.bmtinfonet.org Educates and supports individuals who are facing a bone marrow, blood stem cell, or umbilical cord blood transplant. Provides handbooks, a quarterly newsletter about transplantation, and a directory about transplant centers and resources in the U.S. and Canada. Links patients with survivors for emotional support. Offers attorney referrals for patients who have insurance disputes. Blood and Marrow Transplant Resources 414 352-3219 www.bmtresources.org Offers information about transplant procedures.
Blue Faery: The Adrienne Wilson Liver Cancer Association 818 636-5624 www.bluefaery.org Mission is to prevent, treat, and cure primary liver cancer, specifically Hepatocellular Carcinoma, through research, education, and advocacy BMT Support Line 334 983-6674 www.bmtsupport.org Offers peer support, education, and awareness. Boarding for Breast Cancer 323 467-2663 www.b4bc.org Raises awareness, the importance of early detection, and the value of an active lifestyle through hip, youth-focused educational programs. Bone Marrow Foundation 800 365-1336 212 838-3029 www.bonemarrow.org Provides financial aid, education, and emotional support. The Patient Aid Program assists with the cost of donor searches, compatibility testing, bone marrow harvesting, medications, home and childcare services, medical equipment, transportation and housing expenses associated with the transplant. Bonnie Fisk-Hayden Pt. Reyes and Larkspur, California 415 663-8411 www.aguidetowellness.com Bonnie is an holistic nutrition consultant specializing in joint pain, food cravings, ans blood sugar imbalance. She says, "I teach people how to listen to their bodies and take an active role in their own health."
Bonnie J. Addario Lung Cancer Foundation 601 4th Street, Suite 215 San Francisco 94107 415 357-1278 www.thelungcancerfoundation.org Mission is to eradicate lung cancer through research, early detection, education, prevention, and treatment. Formerly the Bonnie J. Addario “A Breath Away from the Cure” Foundation.
Brain Tumor Society 800 770-8287 toll-free 617 924-9997 www.tbts.org Offers a patient/family telephone network, educational publications, funding for research, and access to support groups. The BTS Cares Financial Assistance Program provides supplementary financial assistance for specific non-medical costs related to a primary brain tumor diagnosis. Breast and Cervical Cancer Care Coordination and Navigation Program 888 921-7465 toll-free www.healthcollaborative.org Provides underserved Californians early access to treatments. Offers financial assistance and extensive referral networks. Service of the California Health Collaborative. Breast Cancer Action 55 New Montgomery #323 San Francisco, California 94105 415 243-9301 www.bcaction.org A grassroots organization that advocates for policy changes directed at eliminating the causes of breast cancer and finding treatments that don’t nearly kill people or cause other diseases. Works to assure universal access to quality health care.
Breast Cancer Alliance 203 698-0014 www.breastcanceralliance.org Funds innovative research and promotes breast health through education and outreach. Breast Cancer: Beyond Convention – The World’s Foremost Authorities on Complementary and Alternative Medicine Offer Advice on Healing Mary Tagliaferri, Isaac Cohen, Debu Tripathy, eds. Foreword by Dean Ornish New York: Atria, 2002
Breast Cancer Center 800 998-9938 toll-free 800 889-8969 toll-free www.patientcenters.com/breastcancer Resource center for those with metastatic breast cancer – individuals who have been initially diagnosed with Stage IV cancer or who are facing a recurrence. Breast Cancer Coordinating Council of Marin 20 North San Pedro Road, Suite 2002 San Rafael, California 94903 415 507-2578 www.marinbreastcancer.org Formed in the mid-1990s and currently represents approximately 25 community groups, health care organizations, and government entities. The Council meets every two months to discuss developments related to breast health and cancer services and resources in Marin County, to identify gaps in breast health services, and to discuss opportunities for improving access to care for all women and men. A part of the Marin County Department of Health & Human Services.
Breast Cancer Fund 1388 Sutter Street #400 San Francisco, California 94109 415 346-8223 www.breastcancerfund.org Identifies and advocates for the elimination of environmental and other preventable causes of the disease. Works from the knowledge that breast cancer is not simply a personal tragedy, but a public health priority that demands action from all.
BreastCancer.net 732 224-0402 www.breastcancer.net Links to major wire services and daily newspapers about the latest news on breast cancer research and treatment each week day.
Breast Cancer Recovery Foundation 608 661-4178 www.bcrf.org Provides environments for women to heal emotionally, spiritually, and physically. Offers the Infinite Boundaries retreat, a 4-day wellness program. Embraces all faith traditions, ages, races, ethnicities, sexual orientations, and financial resources. Breast Cancer Resource Committee 202 463-8040 www.bcresource.org Addresses specifically the African-American population, providing early detection programs, treatment education, support groups, peer counseling, and newsletters to prevent and reduce the incidence of breast cancer. BreastCareSite.com www.thebreastcaresite.com Information about everything from post-surgery options and products to information about insurance and intimacy issues. Offers articles from a group of highly talented writers who share their biographies and their wisdom, humor, and research. Breast Friends for Life www.breastfriendsforlife.org One-to-one breast cancer support network provides comfort, emotional support, and practical information. Staffed by people living with breast cancer, family members and friends of patients, and community partners who know the benefits of receiving and giving support.
Breast Health.com 502 629-6950 www.aboutbreasthealth.com Information, an informative FAQ, and a portal for people to contact physicians and support resources. Brenda Mehling Cancer Fund 661 310-7940 Financial assistance for medical bills, legal services, temporary housing, supplementary disability, home healthcare, travel-related expenses, phone bills, transportation, education, and counseling. Patient must be currently undergoing treatment and between the ages of 18 to 40. Brian Morden Foundation 800 997-7278 toll-free www.brianmordenfoundation.org Provides funding for “Brian Morden Memorial” higher education scholarships. Funds Ewing’s Sarcoma and childhood cancer research. Supports patients, families, and staff of pediatric oncology units. Brian was a courageous 19 year old who battled Ewing’s Sarcoma for more than two years. Bristol-Myers Squibb Patient Assistance Foundation 800 736-0003 toll-free Medication assistance
California Cancer Care Integrative Oncology Program Greenbrae, California 415 925-5000 www.calcancercare.com Helps patients cope with the physical and emotional side effects that accompany cancer treatment. California Department of Fair Employment and Housing 800 884-1684 toll-free Investigates discrimination complaints regarding employment and housing. California Pacific Medical Center Breast Health Center 3698 California Street, 2nd Floor San Francisco, California 94118 415 600-6474 www.cpmc.org/services/women/breast Full range of diagnostic and support services, including screening and diagnostic mammography, ultrasound, image guided biopsy procedures, breast health education, and the Breast Cancer Recovery Program.California Pacific Medical Center Institute for Health and Healing 2300 California Street San Francisco, California 94115 415 600-4325 www.cpmc.org/ihh Integrative medical approach is holistic, comprehensive, and serves the whole person with a highly individualized program. Cameron House 920 Sacramento Street San Francisco, California 94108 415 781-0401 cameronhouse@cameronhouse.org A Chinatown-based multi-service agency which provides a variety of services for the Asian community in the Bay Area. Conducts cancer support groups. Camp Discovery 847 240-1737 jmueller@aad.org Camp for young people ages 10-16 who have a serious skin condition. Under the expert care of dermatologists and nurses, campers enjoy a week among young people and counselors who have skin conditions. Sponsored by the American Academy of Dermatology and free to qualified campers. Camp Kesem - Stanford University PO Box 20526 Stanford, California 94309 650 723-1603 Camp for children ages 6-13 who have or had a parent with cancer. Provides opportunity to develop friendships with peers facing similar challenges, to gain the tools to cope with their parent’s illness or death, and to build self-esteem. Camp sessions are one week long and are free for the families involved.
Camp Mak-a-Dream 406 549-5987 www.campdream.org A camp in Montana that provides a medically-supervised, cost-free experience for children, young adults, and families affected by cancer. Camp Okizu 8 Digital Drive Novato, California 94949 415 382-9083 www.okizu.org suzie@okizu.org Family support program for children with cancer and their families. Offers week-long summer programs for patients and their siblings ages 6-17. Additional family retreat weekends for families with children of all ages, as well as teen and young adult programs.
Camp Tawonga 415 543-2267 www.tawonga.org/weekendfamily.html “Grief and Growing” is a healing weekend for bereaved individuals and families, once a year, usually in May. Through creative play, discussions, ritual, and the healing power of nature, the program is designed to create a safe place to explore feelings and concerns with a sympathetic and supportive community. Cancer411 www.cancer411.org Information on clinical trials, resources, treatment options, and newsletters. CancerAndCareers.org www.cancerandcareers.org Offers help to working women with career and employment issues. CancerBlogger.org www.cancerblogger.org News, information, and blog spot for the latest information and updates. CancerCare for Young Adults 800 813-4673 toll-free www.cancercare.org Professional counseling, facilitated peer support groups, creative workshops, and financial assistance. CancerCare, Inc 800 813-4673 212 712-8400 www.cancercare.org Free professional support services to anyone affected by cancer. Programs include counseling, education, financial assistance, and practical help.
Cancer Climber www.cancerclimber.org A unique organization in Boulder, Colorado dedicated to encouraging those living with cancer to inspire each other. Created through Sean Swarmer’s vision of summiting Everest and inspiring people across all boundaries, CancerClimber challenges and facilitates cancer survivors to climb their own Everest, thus overcoming their own limitations and mental boundaries. Cancer Club 800 586-9062 toll-free 952 944-0639 www.cancerclub.com First organization to provide hope and support through the healing power of humor. Offers inspirational gifts, including books, jewelry, posters, and videos, and a quarterly newsletter. Cancer Consultants.com Oncology Resource Center www.patient.cancerconsultants.com Award-winning online destination for the most current information about prevention, screening, and management of cancer. Information available in Spanish. Cancer Detection Programs: Every Woman Counts 800 511-5300 toll-free Part of the California Department of Public Health. Provides medically underserved women access to screening and diagnostic services for breast and cervical cancer. Cancer Fitness: Exercise Programs for Patients and Survivors Anna L. Schwartz Foreword by Lance Armstrong New York: Simon & Schuster, 2004
Cancer for College 760 510-9571 www.cancerforcollege.org Scholarships for current and former cancer patients who are currently attending either a 4-year accredited university, junior college and/or graduate school. One-time $500 scholarships as well as 4-year perpetual scholarships in the amount of $4,000 per year. Founded in 1993 by Craig Pollard, a two-time cancer survivor.
Cancer Hope Network 877 467-3638 toll-free 908 879-4039 www.cancerhopenetwork.org Provides individual support to patients and their families by matching them with trained volunteers who have undergone and recovered from similar cancer experiences. Matches are based on the type and stage of cancer, treatments used, side effects experienced, and other factors. Cancer Information and Counseling Line 800 525-3777 toll-free www.amc.org Professional counselors provide current medical information, emotional support through short-term counseling, and resource referrals.
Cancer Legal Resource Center 866 843-2572 toll-free www.disabilityrightslegalcenter.org Information and resources on health insurance, employment, government benefits, estate planning, advanced healthcare directives, family law, and consumer assistance. The volunteer panel of attorneys and other professionals provide in-depth information and counsel to callers. All services are free and confidential. Services are available in Spanish.
Cancer Links www.cancerlinks.org A thoughtful source and guide to cancer information on the web. Cancer Lynx ---We Prowl the Net www.cancerlynx.com Advocates for cancer patients and their families. Provides information and very human stories about cancer. Cancer Nutrition Center www.cancernutrition.com Carolyn Katzin, a certified nutrition specialist and author of The Cancer Nutrition Handbook, provides information about the value of food and a diet rich in botanical factors for recovery. Cancer Project 202 244-5038 www.cancerproject.org A collaborative effort of physicians, researchers, and nutritionists educate the public on the benefits of a healthy diet for cancer prevention and survival. Provides classes, books, video programs, fact sheets, brochures, and other materials. Conducts research to investigate dietary issues. A limited selection of Spanish-language publications is available. Cancer Research Institute 800 992-2623 toll-free 212 688-7515 www.cancerresearch.org Develops immunological methods of preventing, treating, and curing cancer. Offers The Cancer Research Institute HelpBook, a booklet on what to do when diagnosed, as well as information on clinical trials that are testing immunology-based treatments. Cancer Resource and Recovery Center 1350 South Eliseo Drive, 1st Floor Greenbrae, California 94904 415 925-7920 www.maringeneral.sutterhealth.org/services/mci Resource on all matters related to breast health and breast cancer. Free support groups for people in all phases of diagnosis, treatment, and recovery. Free lending library of books, video and audio tapes including guided imagery. Educational and recreational programs throughout the year.
CancerQuest www.cancerquest.org Provides an understanding of the disease process and current approaches to detection, diagnosis, and treatment. In partnership with Emory University Winship Cancer Institute.
Cancer Survivors Fund 281 437-7142 www.cancersurvivorsfund.org Awards college scholarships for young cancer survivors based on the applicant’s personal hardships, financial and emotional needs, and academic qualifications.
Cancer Symptoms.org www.cancersymptoms.org Offered by the Oncology Nursing Society to inform patients and caregivers about managing 10 common cancer symptoms. CancerTrials www.cancer.gov/clinicaltrials A service of the National Cancer Institute. Information on clinical trials, what they are, how they work, how to find ongoing trials, results from recent studies, and resources for cancer researchers conducting trials. Cancer Trials Support Unit 888 823-5923 toll-free www.ctsu.org Program to facilitate participation by both patients and physicians in National Cancer Institute-sponsored treatment trials. Cancervive 800 486-2873 toll-free 310 203-9232 www.cancervive.org Dedicated to improving the quality of life for cancer survivors with emotional support, education, and advocacy. Candlelighters Childhood Cancer Foundation 800 366-2223 toll free 301 962-3520 www.candlelighters.org Provides information, peer support, and advocacy through publications, an information clearinghouse, and a network of local support groups. Maintains a list of organizations for financial assistance. Casting for Recovery 888 553-3500 www.castingforrecovery.org Provides no-cost fly fishing retreats at locations around the United States for women who have or have had breast cancer.
Celebrating Life Foundation www.celebratinglife.org Promotes charitable endeavors that encourage the advancement of awareness of breast cancer risk and prevention in the African American community and for women of color. Centers for Disease Control and Prevention 800 311-3435 toll-free 404 498-1515 www.cdc.gov/cancer Materials for patients, physicians, and health professionals. Provides low-income, uninsured, and underserved women access to screening and diagnostic services to detect breast and cervical cancer at the earliest stages through the National Breast and Cervical Cancer Early Detection Program. Enhances the growing knowledge about ovarian cancer by initiating research projects to identify factors related to early detection of the disease, treatment, and survivorship. Centers for Disease Control and Prevention National Colorectal Cancer Roundtable www.cdc.gov/cancer/colorectal Advances colorectal cancer control efforts by improving communication, coordination, and collaboration among health agencies, medical-professional organizations, and the public. Goal to increase the safe and effective use of proven colorectal cancer screening tests among the entire population for whom screening is appropriate, and for these standards to be supported by the relevant medical and specialty societies. Centers for Disease Control and Prevention Screen for Life Campaign www.cdc.gov/cancer/colorectal Informs men and women aged 50 years or older about the importance of having regular colorectal cancer screening tests. Tests can find precancerous polyps that can be removed before they turn into cancer. More than 60 percent of adults aged 50 or older -- the age group at greatest risk of developing colorectal cancer -- have not been screened appropriately. Centers for Medicare & Medicaid Services 877 267-2323 toll-free www.cms.hhs.gov A federal and state insurance program for financial assistance for medical expenses. Charle … A Hair Studio 35 Mitchell Boulevard #4A San Rafael, California 94903 Provides sensitive solutions for hair loss due to chemotherapy/ radiation treatment. Offers human and synthetic hair pieces and accessories.
Charlotte Maxwell Complementary Clinic 5691 Telegraph Avenue Oakland, California 94609 510 601-7660 201 Mission Street San Francisco, California 94110 www.charlottemaxwell.org A state-licensed health clinic providing free complementary and alternative medical treatments (acupuncture, massage, herbs, imagery) to low-income women with cancer. Services include supervised exercise and group support. The In-Home Comfort Care Program provides complementary and alternative medicine for those clients with end-stage cancer who are too weak to come to the Clinic. The Carol Zambel Treatment Access Fund provides financial assistance for additional treatments, herbs, and medications that are not offered by the Clinic.
Chemocare www.chemocare.com A program of the Scott Hamilton CARES initiative. Provides information about chemotherapy drugs and side effects. Children’s Brain Tumor Foundation 866 228-4673 toll-free 212 448-9494 www.cbtf.org Funds research and provides support, education, and advocacy. Provides free publication A Resource Gide for Parents of Children with Brain and Spinal Cord Tumors. Sponsors conferences about research, treatments, and strategies for living. Newsletters, annual teleconferences, a parent-to-parent network, and children’s programs. Full-time pediatric oncology social worker to assist families. Publications available in Spanish. Children’s Cause for Cancer Advocacy 301 562-2765 www.childrenscause.org Addresses survivorship and quality-of-life issues by offering resources for research for drug discovery and development, treatment and aftercare support. Children’s Hospice International 800 242-4453 toll-free 703 684-0330 www.chionline.org Provides support for dying children and their families. Offers educational materials and training programs on pain management and the care of seriously ill children. Children’s Oncology Camps of America 515 491-4999 www.coca-intl.org Founded in 1982 by a dozen pioneer oncology camps whose personnel found that the lives of children with cancer were immeasurably enhanced by camping. Currently there are over 65 member camps in the U.S. and several member camps in Canada, Australia, New Zealand, and Europe. Children’s Organ Transplant Association 800 366-2682 toll-free www.cota.org Funding assistance for children and young adults needing life-saving transplants. Promotes organ, marrow, and tissue donation. Negotiates directly with transplant centers on financial issues. Children’s Treehouse Foundation 303 322-1202 www.childrenstreehousefdn.org Dedicated to improving the emotional health of children whose parents have cancer. The American Cancer Society estimates that more than 315,000 parents with children under 18 will be diagnosed with invasive cancer each year. More than 592,000 children will have their family dynamics permanently changed, evoking many fears, doubts, and questions about their future and that of their parents. Chinatown Public Health Center 1490 Mason Street San Francisco, California 94133 415 364-7600 www.dph.sf.ca.us/chn/healthcenters.htm Offers book Chinese Guide to Breast Cancer Resources. “Dr. Play,” a support group for children whose parents have cancer, meets concurrently with the Chinese Women’s Cancer Support Group, on the first and third Saturdays of the month from 1:30 to 3:30.
Chinese Community Cancer Information Center 835 Jackson Street San Francisco, California 94133 415 677-2458 www.chasf.org/cancer_info.html Serves the Chinese community in the Bay Area. Education, information, breast self-exam training, referral service, patient navigation, transportation services, support groups, nutrition services, prosthesis, wardrobe, grooming, appearance, make-up, wigs.
Chinese Community Health Resource Center 835 Jackson Street San Francisco, California 94133 415 677-2473 www.chasf.org/education/html Promotes a healthier lifestyle among Chinese people through culturally competent, linguistically-appropriate heath education programs and services. Offers health education seminars and classes, cancer-related information and support, and a bilingual health library. Breast prosthesis, hats, turbans, wigs, make-up. Choices in Healing: Integrating the Best of Conventional and Complementary Approaches to Cancer Michael Lerner, Ph.D. MIT Press, 1994 The comprehensive book covers choices in healing, mainstream therapies, complementary therapies, pain therapies, with major sections on spiritual, pharmacological, nutritional, and various specific unconventional treatments. Choices: The Most Complete Sourcebook for Cancer Information Marion E. Morra and Eve Potts New York: HarperCollins, 2003 Clear Center of Health 125 Throckmorton Avenue Mill Valley, California 94941 415 388 5520 www.clearcenterofhealth.com Premier clinic in the Bay Area for alternative and holistic medical care.
ClinicalTrials.gov www.clinicaltrials.gov Service of the National Institute of Health. Information on clinical studies, how they work, and how to find one for your condition. Glossary of terms and links to related web sites. Coalition Against Breast Cancer Survivorship Program 800 430-7761 toll-free www.cabcli.com Provides emotional and financial support to children or teens who have lost a parent to breast cancer, or whose parent is currently experiencing breast cancer, or are children of breast cancer survivors. Coalition of Cancer Cooperative Groups 877 520-4457 toll-free www.cancertrialshelp.org Devoted to improving patient access to clinical trials. Colon Cancer Alliance 877 522-2039 helpline 954 341-0212 www.ccalliance.org Provides patient support and public education, supports research, and advocacy. Offers brochures and booklets, a newsletter, a toll-free helpline, weekly online chats, the Buddies Network which matches survivors and caregivers with others who share similar experiences. Colon Club www.colonclub.com Educates young adults about colorectal cancer, the risk factors, symptoms, and detection in out-of-the-box ways. Goal is to educate as many people as possible, as early as possible, about colorectal cancer. Our wishes are for people to have “colon talk” in their everyday lives, to know the risk factors and symptoms, and to get screened when it is appropriate for them. Colorectal Cancer Coalition 703 548-1225 www.fightcolorectalcancer.org Encourages research to improve screening, diagnosis, and treatment. Advocates for policy decisions that make the most effective prevention and treatment available to all, and for increased awareness that colorectal cancer is preventable, treatable, and beatable. Provides information about clinical trials and treatment options, research and policy news and events, and opportunities for advocacy. Colorectal Cancer Network 301 879-1500 www.colorectal-cancer.net Mission is to eliminate colon cancer and support patients through educational materials and counseling.
Colorectal CareLine 866 657-8634 toll-free Patient Advocate Foundation’s patient/provider hotline provides financial assistance to patients who have been diagnosed with colorectal cancer and are seeking education and access to care.
Commonweal Cancer Help Program Bolinas, California 415 868-0970 www.commonweal.org An integrated week-long healing retreat for people with cancer. Program includes daily group support sessions led by a psychotherapist, massage, yoga, meditation, deep relaxation, imagery work, symbolic learning through sand-tray, poetry, exploration of sacred space, and a gourmet vegetarian diet. Evening sessions led by Commonweal co-founder Michael Lerner explore choices in healing, mainstream therapies, integrative therapies, pain and suffering, and death and dying. Community Action Marin 415 485-1489 www.camarin.org Serves and assists low-income Marin residents in achieving a life of quality with 15 support services programs. Community Breast Health Project 390 Cambridge Avenue Palo Alto, California 650 326-6686 www.cbhp.org Special workshops and services include information on mothering and breast cancer, a young women’s breast cancer support community, a metastatic breast cancer support group, and DCIS support group. Offers Stories of the Journey: A Creative Writing Workshop for Breast Cancer Survivors. Otherservices include a helpline, library, newsletter, an open house every Thursday evening with physicians to answer questions, assistance preparing for medical appointments, short-term counseling, and a “buddy system” which matches an individual with someone who has gone through a similar situation. See “What Do I Tell My Child?” on the website. Free
Companion Arts: Care for the Journey 247 Posada del Sol Novato, California 94949 415 884-4483 www.companionarts.org In-service programs and audio resources for individual care professionals and healthcare organizations, focusing on sustaining health through a blend of the arts and core teachings in compassionate care. Complementary and Integrative Medicine in Cancer Care and Prevention: Foundations and Evidence-Based Interventions Marc S. Micozzi New York: Springer, 2006
Conversations! 806 355-2565 www.ovarian-news.org Increases public and professional awareness and understanding of ovarian cancer, advocates for increased research and funding for more effective diagnostics and treatment, and provides support for coping with the side effects of treatment. Provides matches for women seeking to contact other women with ovarian cancer. Coping with Cancer www.copingmag.com America’s consumer magazine for people whose lives have been touched by cancer. Provides knowledge, hope, and inspiration.Coping with Chemo 310 479-1212 www.chemo.starlightprograms.org Helps teens with cancer to navigate their chemotherapy treatments by fostering connections with others through online blogging and chat rooms and education. Cops Care Cancer Foundation 408 264-2223 www.CopsCareCancerFoundation.org Provides financial donations and support to the Lucile Packard Children’s Hospital to help fund social service programs for children, long term housing costs, prevention programs, research projects, and a survivor’s scholarship program. Corporate Angel Network 866 328-1313 toll-free 914 328-1313 www.corpangelnetwork.org Arranges free flights to treatment centers, using the empty seats on corporate aircraft flying on routine business. Open to all cancer patients who are ambulatory and not in need of medical support while traveling. Eligibility is not based on financial need and patients may travel as often as necessary. Corstone (formerly Center for Attitudinal Healing 33 Buchanan Drive Sausalito, California 415 331-6161 Provides free emotional and spiritual support services to children, adults, elders, and families dealing with illness and loss.
County of Marin Health Services Division Epidemiology Program on Breast Cancer 20 N. San Pedro Road, Suite #2028 San Rafael, California 94903 415 507-4077 Research effort by County of Marin, in collaboration with the Center for Disease Control and the State of California, on the breast cancer rates in Marin County.
Crossing the Finish Line 484 674-4778 www.crossingthefinishline.org Provides young adults and their families a retreat from the physical and emotional demands of cancer by providing a one-week, expense-paid vacation excursion in a comfortable, secure environment. Cure: Cancer Updates, Research & Education 800 210-2873 toll-free www.curetoday.com Magazine for individuals learning to live with cancer and blood disorders. Cure for Cancers 323 255-5187 www.cure forcancers.org Raises awareness, funds research, and provides medical directory, referral directory for counseling, current news regarding treatments, and a support network though social events, sports activities, and an online forum. Offers a patient-aid grant program to assist with cost-of-living expenses.
CureSearch National Childhood Cancer Foundation 800 458-6223 toll-free 240 235-2246 www.curesearch.org In partnership with the Children’s Oncology Group and the National Childhood Cancer Foundation. Treatment information and support resources for patients, families, and health professionals. Extensive Resource Directory of local, national, and international organizations. Cyclists Combating Cancer listserv@listserv.acor.org A group of survivors, their families and friends provide support through sharing experiences about treatment, life, and other passions in life, high among them cycling. A free support group designed for people who have beaten or are still fighting cancer … and also love cycling. In a purely social and supportive setting, members are encouraged to discuss any and all issues related to cancer and/or cycling. Donovan Hicks San Francisco and Oakland, California sanfranblissco@gmail.com 530 588-3619 Donovan offers private yoga classes in your home. He charges whatever you can afford if you want to pay or accepts chocolate if you don't want to pay.
Dorothy Boerste San Francisco, California www.dorothyboerste.com Dorothy uses EMDR (Eye Motion Desensitization and Reprocessing) as an effective tool for cancer survivors. She feels that this approach helps clients to remove the negative feelings around a painful experience, to feel more in control of their illness, and to be more prepared for surgery and its aftermath. Dream Foundation 805 564-2131 www.dreamfoundation.org Mission is to grant wishes and enhance the quality of life for adults over the age of 18 years with a terminal illness. Dr. Susan Love Research Foundation 310 230-1612 www.susanlovemd.org Mission is to eradicate breast cancer and improve the quality of women’s health through innovative research, education and advocacy. Website of breast cancer surgeon Dr. Susan Love, author of Dr. Susan Love’s Breast Book and Dr. Susan Love’s Hormone Book. Eat, Drink, and Be Healthy: The Harvard Medical School Guide to Healthy Eating Walter C. Willett, et al. New York: Free Press, 2005 Eating Well, Staying Well During and After Cancer Abby S. Bloch, Barrie Cassileth, Michelle Holmes, Cynthia Thomson, eds. Atlanta: American Cancer Society, 2004 EmergingMed.com 877 601-8601 toll-free www.emergingmed.com Free and confidential clinical trial matching and referral service. Mission is to increase treatment options and to speed up drug development through increased enrollment in clinical trials. EndocrineWeb.com www.endocrineweb.com Information about thyroid cancer symptoms, treatments, and resources. Equal Employment Opportunity Commission 800 669-4000 toll-free www.eeoc.gov Federal agency that oversees and enforces employment laws. Information about different types of discrimination, how to file a charge of discrimination, and important laws regarding this subject. Guide explains when cancer is a disability under the American Disabilities Act, when an employer may ask an applicant or employee questions about his or her cancer, what types of reasonable accommodations employees with cancer may need, and how employers can ensure that they do not discriminate against applicants and employees with cancer. Information available in Spanish and several other languages. Everyone’s Guide to Cancer Survivorship Ernest H. Rosenbaum, M.D., David Spiegel, M.D., Patricia Fobair, L.C.S.W., M.P.H., Holly Gautier, R.N. Andrews McMeel Publishing, 2007 A comprehensive, authoritative, guide for the increasing number of cancer survivors, giving them the solid, well-researched, easy-to-understand information they need to deal with the lingering effects of cancer treatment and improve their overall health and longevity. The growing number of people approaching life post-cancer will find solace, understanding, and opportunity with information specifically geared to cancer survivors, including special health challenges of survivor care, guidelines for future health screenings, prevention of and therapies for common medical problems survivors face, diet and exercise tips for better health and longevity, strategies for coping with the psychological effects of cancer, and therapy through creative expression. With this book, cancer survivors can make informed healthy choices as they continue life after cancer. Exercise and Cancer Recovery Carole M. Schneider, Carolyn A. Dennehy, Susan D. Carter Champaign, IL: Human Kinetics Publishers, 2003 Eyes on the Prize.org www.eyesontheprize.org Information and emotional support for women with gynecologic cancers, their families and friends, and healthcare providers. Fair Employment for Cancer Patients and Survivors www.fecaps.com A grassroots cancer support group specializing in workplace issues. Referrals to legal and medical resources. Advocates for individual employees on a case-by-case basis (but they are not attorneys and cannot give legal advice). Fairygodmother Foundation 312 573-0028 www.fairygodmother.org Grants wishes to adults facing terminal illness. Family Caregiver Alliance 180 Montgomery Street, Suite 1100 San Francisco, California 94104 800 445-8106 toll-free 415 434-3388 www.caregiver.org Supports and assists caregivers through education, research, services, and advocacy.
Family Caregiving 101 www.familycaregiving101.org Partnership of the National Family Caregivers Association and the National Alliance for Caregiving. Provides tools, skills and information they need to protect their own physical and mental health while they provide quality care for their loved ones. Includes overview of the illness and treatment, pain and symptom management, infection control, recognizing and dealing with mental changes, training in bed-care skills, an explanation of legal issues regarding wills, power of attorney, and financial management. Fertile Hope 888 994-4673 toll-free www.fertilehope.org Reproductive information, support, and hope for those whose medical treatments present the risk of infertility. Addresses fertility risks, preservation options, and financial assistance. First Descents 970 845-8400 www.firstdescents.org An innovative camp experience in Vail, Colorado, for young adults with cancer. Offers kayaking, extreme sports, and professional athletics. FORCE: Facing Our Risk of Cancer Empowered 866 288-7475 toll-free 954 255-8732 www.facingourrisk.org For individuals affected by hereditary breast and ovarian cancer. Information about options for managing and living with these risk factors. Advocates for the concerns and interests of the high-risk constituency, promotes research specific to hereditary cancer, and reduces disparities among underserved populations by promoting access to information, resources, and clinical trials specific to hereditary breast and ovarian cancer. Foundation for Integrative Oncology P.O. Box 5031 Larkspur, California 94977 415 721-9818 Provides scholarships for people to receive complementary therapies in conjunction with cancer treatment.
Genentech Access to Care Foundation 800 530-3083 toll-free Medication assistance
Gift of Life Organ Transplant Support Group 559 584-7471 Contact Larry Peichoto for more information on individual support. Gilda Radner Familial Ovarian Cancer Registry 800 682-7426 toll-free www.ovariancancer.com An international registry of families with two or more relatives with ovarian cancer. Pursues research as to causes of familial ovarian cancer. Gilda’s Club Worldwide 888 445-3248 toll-free 917 305-0549 www.gildasclub.org A network of support centers where men, women, and children join with others to build emotional and social support. Lectures, workshops, networking groups, special events, and a children’s program are available. Giving Voice 877 892-6742 toll-free 612 822-4784 www.givingvoice.org Newsletter published by the Women’s Cancer Resource Center, which focuses on both supportive care during the cancer journey and active advocacy for cancer prevention for future generations. GlaxoSmithKline Commitment to Access 866 265-6491 toll-free Medication assistance
Global Lung Cancer Coalition www.lungcancercoalition.org The “international voice” of lung cancer patients comprising 21 non-government patient organizations around the world. Golden Gate Center for Integrative Cancer Care 350 Parnassus Avenue, Suite 701 San Francisco, California 415 682-0843 Incorporates acupuncture, Chinese herbs, and nutritional supplements with conventional chemotherapy.
GriefNet.org www.griefnet.org An internet community of persons dealing with grief, death, and major loss. Over 50 e-mail support groups.
Group Loop 888 793-WELL toll-free www.grouploop.org Provides interactive online support and valuable survivorship resources for teens with cancer and their parents. Gynecologic Cancer Foundation 800 444-4441 toll-free hotline 312 578-1439 www.thegcf.org Established by the Society of Gynecologic Oncologists to promote public awareness about the prevention, early detection, and treatment. Hadassah 888 303-3640 toll-free www.hadassah.org Program initiative called Healthy Women, Healthy Lives serves as the umbrella for the entire Women’s Health Program. Information on exercise, nutrition, prevention, and early detection of diseases that affect women. Offers program on patient/doctor communications which empowers and educates women by providing them with the knowledge necessary to make appropriate and informed medical decisions, teaching them how to partner with their physicians, thus resulting in improved health care. Hair Solutions Sausalito, California www.hairsolutions.org Caren Miranda offers wigs or laser treatments for hair growth after chemotherapy.
Hand in Hand The Sarcoma Alliance info@sarcomaalliance.org The Suzanne R. Leider Memorial Assistance Fund offers specific financial assistance for second opionion consultations by reimbursing expenses related to travel, phone bills, costs of the evaluation, and directly related charges. Healing Cuisine Marin County, California 415 381-1735 www.healingcuisine.com Natural health expert, Meredith McCarty, offers monthly cooking classes and lectures in Marin, as well as nutrition counseling. (See Meredith McCarty). Healing Journeys 800 423-9882 toll-free 916 391-0549 www.healingjourneys.org Offers free conferences titled “Cancer as a Turning Point, From Surviving to Thriving” which include speakers, performers, music, humor, healing stories, from many women who are thriving after a cancer diagnosis.
Health Insurance Counseling and Advocacy Program (HICAP) 800 434-0222 toll-free www.cahealthadvocates.org Information and counseling on Medicare benefits and rights, legal help, private supplemental insurance coverage, retiree or employer group health coverage, long-term care insurance, and your rights as a consumer. HealthInsuranceInfo.net www.healthinsuranceinfo.net Provides state-by-state Consumer Guide for Getting and Keeping Health Insurance which summarizes protections but is not a substitute for professional legal or accounting advice. HealthWell Foundation 800 675-8416 toll-free www.healthwellfoundation.org Assists individuals who cannot afford their insurance co-payments, premiums, co-insurance, and other out-of-pocket healthcare costs. Healthy Eating for Life to Prevent and Treat Cancer Physicians Committee for Responsible Medicine New York: Wiley, 2002 Healthy Marin Partnership P.O. Box 8010 San Rafael, California 94912 415 492-4786 www.healthymarin.org Collaborative enterprise to address the health status of people in Marin.
Hirschberg Foundation for Pancreatic Cancer Research 310 473-5121 www.pancreatic.org Raises awareness, advances research, provides information, resources, and support. Hole in the Wall Gang Camp www.holeinthewall.org Camp provides children with cancer a camping experience of the highest quality, while extending year-round support to their families and healthcare providers.
Hope Street Kids www.hopestreetkids.org Mission is to eliminate childhood cancer through research, advocacy to increase access to pediatric cancer care, improve palliative care, and education for those who care for pediatric cancer patients. Hospice by the Bay 17 East Sir Francis Drake Blvd. Larkspur, California 94939 415 927-2273 www.hospiceofmarin.com Commitment to providing the highest quality hospice and palliative care, grief counseling and support , emotional and spiritual care to individuals and their loved ones, with the goal of bringing solace and meaning to each day of life. Second oldest hospice in the U.S. Formerly Hospice of Marin and now expanded to include Marin, San Francisco, and Sonoma. Hospice Education Institute 800 331-1620 toll-free 207 255-8800 www.hospiceworld.org Informs, educates, and support peoples seeking or providing care for the dying and the bereaved. HospiceLink (HospiceLink@hospiceworld.org), maintains a database directory of all hospice and palliative care programs. Provides information about the principles and practices of good hospice and palliative care.
Hospice Foundation of America 800 854-3402 toll-free www.hospicefoundation.org Promotes the development and application of hospice and its philosophy of care to enhance the American healthcare system. Assists individuals who are coping with issues of care-giving, terminal illness, and grief by providing education, publications, and an online hospice locator. Imaginis www.imaginis.com Information on breast cancer and related women’s health issues. Explains complicated terms in everyday language to assist in making informed decisions. Imani’s Breast Care 546 Ninth Street Oakland, California 94607 510 465-7333 Store specializes in post-mastectomy services including a boutique and in-home fitting services for forms and bras, swim forms, scarves, and compression garments. Provides skin and body care treatment.
I’m Too Young For This! Cancer Foundation 877 735-4673 toll-free www.imtooyoungforthis.org Motivates young adults affected by cancer to get busy living by expressing themselves, sharing their stories, and celebrating the art of survivorship. An indispensable navigational resource to educate, empower, and mobilize adolescents and young adults affected by cancer. A leading survivor-led advocacy group working on behalf of survivors and caregivers under the age of 40. Advocates to end isolation, build community, and connect people with resources and to each other. They use music, the arts, and social media to organize, mobilize, and activate young adults to the cause, de-stigmatize cancer as a death sentence (“your life + cancer, where remission is not a cure and survivorship is all the rage”), and “make it hip to talk openly about stupid cancer.” One of Time’s 50 best websites of 2007. Inflammatory Breast Cancer Research Foundation www.ibcresearch.org Supports research and public awareness, with the goal to determine its causes and increase the effectiveness of its treatment. Intercultural Cancer Council 713 798-4617 www.iccnetwork.org Promotes policies, programs, partnerships, and research to relieve the burden of cancer among racial and ethnic minorities and medically underserved populations. International Association Hospice and Palliative Care 866 374-2472 toll-free 936 321-9846 www.hospicecare.com Promotes the development of hospice and palliative care for patients and families. Works with existing associations, agencies, and individuals to improve communication, access to resources, and opportunities in education and training. International Association of Laryngectomees 866 425-3678 toll-free 209 473-3480 www.larynxlink.com Member clubs are generally known as “Lost Chord” or “New Voice” clubs. Promotes the rehabilitation of the members by fostering improvement in laryngectomee programs and improving the training for teachers of post-laryngectomy speech. Directory of laryngectomee-experienced speech instructors. International Myeloma Foundation 800 452-2873 toll-free hotline 818 487-7455 www.myeloma.org Supports education, treatment, and research. Hotline, seminars, and educational materials. Lists support groups. Institute for Health and Healing 5 Bon Air Road, Suite 121 Larkspur, California 94939 415 925-7624 Comprehensive integrative medicine programs within a major medical center. The holistic care model integrates proven healing approaches from around the world into patients’ conventional medical care. Workshops include guided imagery, massage therapy, expressive arts, healing music, art and imagery. Similar center at California Pacific Medical Center in San Francisco.
Ivy’s Place www.ivysplace.org Promotes ovarian cancer awareness and to share the stories of people whose lives have been touched. Jacquline S. Chan, D.O. Mill Valley, California www.clearcenterofhealth.com A holistic physician, Dr. Chan specializes in the treatment of strengthening the immune system. Jan Cercone, Music Practitioner, RN Novato, California www.Musicforjoyand healing.com Jan bathes her clients in a bath of beautiful gongs, bowls, and voice. In her Personal Healing sessions, she creates a computerized graph of your vibratory field.
Jay Hamilton-Roth Marin County, California www.ManyGoodIdeas.com Jay works with cancer survivors to help design, troubleshoot, and energize their non-profit or for-profit business marketing plans. Jennifer Whyte Marin County and San Francisco, California jenblack2000@yahoo.com 415 225-1695 Jennifer offers private yoga classes for individuals and small groups in Mairn and San Francisco.
Jessica Reid Tsukahara, RN MFT San Francisco and Mill Valley, California www.jrtmarintherapy.com Jessica works with adults, teens, and children in her psychotherapy practice. She describes her therapy as very interactive, creating a sanctuary together for her clients to sort through their feelings and find new perspectives. She believes that being a Registered Nurse makes her more effective as a marriage and family therapist. Jewish Family & Children’s Agencies 600 5th Avenue San Rafael, California 94901 415 491-7960 marin@jfcs.org www.ajfca.org Social services and financial assistance tfor children, adults, and the elderly. More than 145 agencies throughout the US and Canada.
Joan Hangarter, DC MS Marin County, California www.makeyourownmiracle.com Dr. Joan, the founder of The Miracle Makers Club, helps her clientscreate miracles in their lives.
Joan’s Legacy 212 627-5500 www.joanslegacy.org The Joan Scarangello Foundation to Conquer Lung Cancer is committed to end lung cancer by funding innovative research and increasing awareness of the world’s leading cancer killer, with a special focus on non-smoking-related lung cancer. Joan Steidinger, PhD Mill Valley, California Joan works with her psychotherapy clients in an interactive manner, using cognitive-behavioral, psycho-educational, and dynamic-oriented techniques. She has had significant experience with cancer ... her mother died of metastasized breast cancer and her husband survived prostate cancer.
Job Accommodation Network 800 526-7234 toll-free www.jan.wvu.edu Tools to help you understand the types of workplace adjustments that may help you to continue working during and after cancer treatment. The American Disabilities Act (ADA) is described in detail. Examples of worksite modifications and self-employment information are also provided. Kaiser Permanente 99 Montecillo Road San Rafael, California 94903 415 444-2496 www.kp.org Comprehensive breast health services from early detection to coordination of care, including mammography services and outreach, breast health resources in the health education center, tumor board case review meetings, and support groups for newly-diagnosed through after-treatment, as well as for family members and caregivers. All groups are free and open to the public. Breast Care Coordinator works individually with the patients from diagnosis throughout treatment, coordinating services and providing support.
Kara Grief Support 457 Kingsley Avenue Palo Alto, California 94301 650 321-5272 www.kara-grief.org A center offering compassionate peer support and education to individuals, families, and organizations coping with death and dying. Mission is to empower children, teens, and adults to find their way through grief so that they can rebuild their lives with renewed hope and meaning.
Karen Swanson Enabling Fund Community Breast Health Project Palo Alto, California 650 326-6686 www.cbhp.org Offers financial support to persons with breast cancer throughout the Bay Area. Fund in not intended for treatment but for improving the quality or ease of life, or of the dying process. Keep a Breast Foundation www.keep-a-breast-org Produces art events that increase breast cancer awareness among young people and benefit breast cancer education, prevention, and treatment programs in communities around the world. Kelly Quintia San Francisco and Marin County, California 415 265-4451 Kelly offers private personalized restorative yoga classes.
Kidney Cancer Association 800 516-8051 toll-free 312 436-1455 www.kidneycancer.org KCA, a global organization made of patients, family members, physicians, researchers, and other health professionals, supports research, offers printed materials about the diagnosis and treatment of kidney cancer, sponsors support groups, chat sessions, and LiveHelp, and provides physician referral information.
KidsAid.com www.kidsaid.com A safe place for kids to help each other deal with grief and loss and feelings in an e-mail support group, to share and view artwork and stories, and for parents and kids to ask questions and find answers. KidsCope 404 892-1437 www.kidscope.org Purpose is to help families and children and teens better understand and cope with the effects from cancer and chemotherapy in a parent. Develops innovative programs and materials that communicate a message of hope to families dealing with this crisis. Offers free videotape My Mom Has Breast Cancer and comic book Kemo Shark to patients and medical professionals.
Kids Konnected 800 582-5443 toll free 800 899-2866 toll-free hotline 949 582-5443 www.kidskonnected.org Mission is to provide friendship, understanding, education, and support for children and teens who have a parent with cancer or have lost a parent to cancer. Program was developed by Jon Wagner-Holtz, whose mom was diagnosed with breast cancer when he was 9 years old. He quickly realized he needed to talk with others kids whose moms had cancer. His personal method of coping with this experience was to organize this group. Kids helping kids so they don’t have to be alone anymore. Several summer camps are available. Database of books about coping with cancer. Lance Armstrong Foundation 866 235-7205 toll-free 512 235-8820 http://www.Livestrong.org The Foundation focuses its activities on survivor resources, support, survivorship programs, national advocacy initiatives, scientific and clinical research grants. LAF helps survivors face the challenges and changes that come with cancer, by helping them understand what to expect from the cancer experience while providing support along the way and guides them in asking the right questions. Through the online education resources, survivors can learn the practical information and tools that cancer survivors need to live strong. Survivors can download worksheets to organize and guide their cancer experiences and hear stories by other survivors. LAF provides education, information about treatment options, clinical trials, new treatments in development, counseling services and referrals to local resources, and assistance with financial, employment or insurance issues. We fight for the 28 million people around the world living with cancer today. There can be -- and should be -- life after cancer for more people. That is why we kick in at the moment of diagnosis, giving people the resources and support they need to fight cancer head-on. We find innovative ways to raise awareness, fund research, and end the stigma about cancer that many survivors face. We connect people and communities to drive social change, and we call for state, national, and world leaders to help fight this disease. Anyone, anywhere can join our fight against cancer.
LaRue Foundation 310 248-6165 www.laruefoundation.com Advocacy for young women affected by breast cancer through the education of both the medical and insurance communities about the possibility of breast cancer misdiagnoses among women under 40. LawHelp.org www.lawhelp.org Helps low- and moderate-income people find free legal aid programs in their communities for information related to housing, work, bankruptcy, disability, immigration and other topics. Legal Aid of Marin 30 North San Pedro Road #220 Marin Justice Center San Rafael, California 94903 415 492-0230 Provides legal assistance on civil matters for low-income residents. Does not include Medicare, SSI, or benefits.
Legal Services Corporaiton 202 295-1500 www.lsc.gov LSC has more than 900 offices across the country to help Americans gain access to the legal system.
Lesbian Community Cancer Project 773 561-4662 www.lccp.org Created by feminists in 1990 to make the medical establishment more sensitive and responsive to women, specifically lesbians, and to help women make more informed decisions about their care. Leukemia and Lymphoma Society 800 955-4572 toll-free 877 557-2672 toll free Co-pay Assistance Program 914 949-5213 www.leukemia-lymphoma.org 1390 Market Street, Suite 1200 San Francisco, California 94102 415 625-1100 www.lls.org/sf The world’s largest volunteer health organization dedicated to funding blood cancer research, education, and patient services. The goal is to find cures for leukemia, lymphoma, Hodgkin’s disease, multiple myeloma, myelodysplastic/myeloproliferative disorders, and other blood-related cancers and to improve the quality of life of patients and their families. The Society supports medical research and provides health education materials as well as the following services: patient financial aid for specified treatment expenses and transportation, a Co-pay Assistance Program that provides funds for insurance premiums, co-pays, and certain prescription drugs, family support groups, First Connection (a professionally supervised peer support program), referrals, school re-entry materials, and public and professional education.
Liddy Shriver Sarcoma Initiative www.liddyshriversarcomainitiative.org Goals to increase public awareness of sarcoma and raise funds for research and clinical trials.
Life Beyond Cancer 832 601-8766 www.usoncology.com/Resources/ A four-day retreat for women living with cancer. Includes workshops, lectures, and group activities that will enable them to return to their communities to begin support services and advocacy programs. Lilly Oncology Reimbursement Assistance Program 888 443-6927 toll-free Medication assistance Lin Ivice, MSW, CPT Marin County, California www.MarinHomeFit.com Lin specializes in at-home fitness and brings equipment (free weights, elastic tubing, stability and medicine balls) to your home for personal training sessions. Lin is certified by the American Fitness and Aerobics Association as a personal trainer and by the Temple of Kriya Yoga in Chicago as a yoga instructor. Her programs address weight loss and body fat reduction, muscle toning and strengthening, postural alighment and core stability, flexibility, endurance, sports-specific traing, pre- and post-rehabilitation, special needs and chronic illness. She does partner and small group trainings.
Linking A.R.M.S. 800 813-4673 toll-free Financial assistance for hormonal and oral chemotherapy, pain and anti-nausea medication, lymphedema supplies and durable medical equipment. In partnership with the Susan G. Komen Breast Cancer Foundation. Lisa Rueff Mill Valley, California www.yogaventures.org Lisa offers private yoga classes in Marin as well as yoga retreats in the Bay Area. She also instructs clients in the healing benefits of Thai massage practices.
Lissa Rankin MD Mill Valley, California www.lissarankin.com www. clearcenterofhealth.com An integrative gynecologist at Clear Center of Health in Mill Valley as well as an artist with an exhibition showcasing the beauty of breast cancer survivors (The Woman Inside Project).
LIVESTRONG SurvivorCare Program 866 235-7205 toll-free www.livestrong.org/survivorcare Offers assistance to all cancer survivors, including the person diagnosed, caregivers, family and friends. The program provides education, information about treatment options and new treatments in development, counseling services and assistance with financial, employment or insurance issues. To provide these services, LIVESTRONG SurvivorCare has partnered with several organizations including CancerCare, Patient Advocate Foundation, and EmergingMed. The LIVESTRONG Survivorship Notebook is a tool that can help you organize and guide your cancer experience. The portable 3-ring binder contains a variety of information covering a full range of physical, emotional, and practical survivorship topics. You can order a free notebook at www.livestrong.org/notebook. Shipping and handling costs will apply.
LIVESTRONG Young Adult Alliance 512 236-8820 www.livestrong.org A coalition and leadership community of key voices in cancer advocacy and public health determined to bring about positive results for young adults with cancer.
Living Beyond Breast Cancer 888 735-5222 toll-free 610 645-4567 www.lbbc.org LBBC is an educational organization that aims to empower women living with breast cancer to live as long as possible with the best quality of life. Offers an interactive message board, information about upcoming conferences and teleconferences, a toll-free Survivors Helpline, a Young Survivors Network for women diagnosed with breast cancer who are age 45 or younger, and outreach programs for medically underserved communities. Produces a quarterly educational newsletter, a book for African American women living with breast cancer, and programs for caregivers and healthy care professionals.
Living Donors Online! www.livingdonorsonline.org Mission is to improve the living donation experience. Strives to be the preeminent online community for living donors, potential donors, their families, and medical professionals. “Living donors” are living individuals who have given a kidney, lung, liver, bone marrow, or other organ or tissue for transplantation to another person in need. Living/ Dying Project P.O. Box 357 Fairfax, California 94978 415 456-3915 www.livingdying.org Provides spiritual support for those faced with a life-threatening illness, their family and caregivers.
Living Through Breast Cancer Carolyn M. Kaelin, Francesca Coltera New York: McGraw-Hill, 2005 Living Well With Cancer: A Nurse Tells You Everything You Need to Know About Managing the Side Effects of Your Treatment Katen Moore, Libby Schmais Perigee, 2002 Locks of Love 561 963-1677 www.locksoflove.org Provides hairpieces to financially disadvantaged children and teens under age 18 from medical hair loss. They use donated hair to create the highest quality hair prosthetics.
Long Term Survivors Listserve www.listser.acor.org Addresses the social issues that are of concern to survivors (insurance, disability benefits, employment, and education discrimination). Survivors can openly discuss the problems related to treatment and the psychological and emotional impact of being a “long-term survivor” rather than a “cancer patient.”
Look Good …. Feel Better 800 395-5665 toll-free www.lookgoodfeelbetter.org A free national program of the American Cancer Society dedicated to teaching women cancer patients about beauty techniques to help restore their appearance and self-image during cancer treatment. Lora Amara and Soulful Gardening Marin County, California www.soulfulgardentherapy.com Laura spends time with her cancer surivvor clients in their gardens to help them strengthen their connection to the rhythms of the earth and their own healing.
Lotsa Helping Hands www.lotsahelpinghands.com A private group calendar designed for organizing helpers, meal delivery, rides, and other tasks necessary to support a cancer family. Lung Cancer Alliance 800 298-2436 toll-free hotline 202 463-2080 www.lungcanceralliance.org Offers programs designed to improve the quality of life for people with lung cancer, including: the Lung Cancer hotline, a toll-free information and referral service; the Phone Buddy program, a peer-to-peer support network; Lung Cancer Awareness Month, a national education and advocacy campaign; Spirit & Breath, the quarterly newsletter; and Advocacy Alert, where advocates can receive alerts to participate in or respond to important lung cancer issues. Also offers a Clinical Trials Matching Service. Lung Cancer Online www.lungcanceronline.org Mission is to improve the quality of care and quality of life for people with lung cancer by funding lung cancer research and providing information to patients and families.
LungCancer.org 800 813-4673 toll-free www.lungcancer.org A program of CancerCare, a national nonprofit organization that provides free professional support services to anyone affected by lung cancer. Services include counseling, education, financial assistance, and practical help and are provided by trained oncology social workers and are completely free of charge.
Lung Cancer Support Community www.lchelp.org Goal is to provide the best lung cancer center on the web to foster hope and give support to anyone affected by a lung cancer diagnosis. The first organization solely dedicated to giving support to anyone affected by lung cancer.
Lustgarten Foundation for Pancreatic Cancer Research 866 789-1000 toll-free 516 803-2304 www.lustgartenfoundation.org Advocates for increased funding and support of pancreatic cancer research, facilitates the dialogue among the medical and scientific communities about cancer research efforts, advocates for an increase in the annual NCI budget, and increases the public’s awareness of pancreatic cancer diagnosis, treatment, and prevention. Provides informational support for patients, their families, and friends. Offers handbook Understanding Pancreatic Cancer. Links on website to organizations that provide publications, financial assistance, and support services. Lymphoma Foundation of America 800 385-1060 toll-free hotline 734 222-1100 www.lymphomahelp.org LFA is an independent nonprofit organization that provides individual counseling, peer counseling, support groups, referrals for legal advice and second opinions, and treatment information. Lymphoma Research Foundation Patient Services 800 500-9976 310 204-7040 www.lymphoma.org The nation’s largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and healthcare professionals with critical information on the disease. The mission is to eradicate lymphoma and serve those touched by this disease. Offers the Lymphoma helpline, information on clinical trials, a support network, conferences and teleconferences, publications, and the patient aid grant program.
Lymphoma Research Foundation Research and Advocacy 800 235-6848 toll-free 212 349-2910 www.lymphoma.org Funds research into areas such as new anti-body treatments, vaccine treatments, profiling tumors, testing new therapies, and the role of viruses. Also advocates for lymphoma-related legislation. Created LymphomADVOCATES, a grassroots action network to be the voice of individuals who take action in support of finding a cure and helping those touched by lymphoma. Maile Sivert Marin County, California www.mailesivert.com Maile teaches yoga to clients in their San Francisco or Marin homes or in her West Marin home studio. She teaches Astanga, Hatha Flow, Gentle and Restorative Yoga to all levels of practtioners.
Make-a-Wish Foundation of America 800 722-9474 toll-free 602 279-9474 www.wish.org An organization that grants the wishes of children and teens, ages 2 to 18, who have life-threatening illnesses. Making Headway Foundation Inc. 914 238-8384 www.makingheadway.org Strives to improve treatment, quality of life and survivorship for children and adolescents with brain and spinal cord tumors through research, support, education, and advocacy.
Making Memories Breast Cancer Foundation www.makingmemories.org Mission to grant wishes for metastatic breast cancer patients to have a dream or wish fulfilled by providing a special time of ‘Making Memories’ together with their families. Strives to advance the awareness of breast cancer and to educate the public about the vast resources and support available to breast cancer patients and their families. MaleCare 212 844-8369 www.malecare.com Comprehensive online support resource portal primarily for young men living with, through, or beyond prostate and/or testicular cancer. MAMM Magazine www.mamm.com The first magazine devoted to meeting the needs of women diagnosed with breast and reproductive cancers. Helps readers understand more about their diagnoses, improve their quality of life, and assess current treatments and new therapies on the horizon. Marguerite C. Johnson Senior Center 640 Drake Avenue Marin City, California 94965 415 332-9323 A non-profit organization located in southern Marin providing programs for senior citizens 60 and older. Activities include monthly shopping trips, groceries, bingo, arts & crafts, tai-chi, movie day, and monthly lunches with guest speakers.
Marilyn’s Fund Marin General Hospital Foundation 1350 South Eliseo #140 Greenbrae, California 94904 415 925-7920 Provides a one-time grant of financial assistance up to $300 to women for complementary treatments, medications, wigs, nutritional supplements, and miscellaneous expenses while they are in treatment.
Marin Cancer Institute 1350 South Eliseo Drive Greenbrae, California 94904 415 925-7822 www.marincancerinstitute.org An integrated program of care that promotes prevention, early detection, and provides treatment, rehabilitation, and supportive care offered in the Cancer Care Center at Marin General Hospital. A coordinated comprehensive breast imaging, breast cancer diagnosis, treatment, and recovery program. Provides individual and group education on all aspects of breast health and breast cancer. Cancer support groups, including a group focusing on cancer and parenthood and one for partners of women with breast cancer. Workshops, retreats, and classes incorporate yoga and other healing arts. Resource Center offers books, videos, and tapes. Prosthesis, wardrobe, grooming, breast prosthesis, hats and turbans, wigs. Marin Cancer Project 230 Marinship Way, Suite 190 Sausalito, California 94965 P.O. Box 1146 Ross, California 94957 (mailing address) 415 289-1001 www.marincancerproject.org Mission is to raise awareness about the high incidences of cancer in Marin and give voice to community concerns, and together search for the cause, seek solutions, and strive to become a healthier, more sustainable community. The purpose is to investigate how exposures in our daily lives increase the risk of cancer, reduce harmful environmental conditions, and educate communities on healthy lifestyle choices.
Marin Center for Independent Living 710 Fourth Street San Rafael, California 94901 415 459-6245 Program for under-insured, low-income residents. Provides financial assistance with medical premiums and rent/mortgage payments. Maximum allotment is $2000 per person. Offers benefits counseling, advocacy, referrals to resources, lists of jobs and affordable housing, and case management. Public and private benefits counseling services for individuals diagnosed with breast cancer in Marin County.
Marin Community Clinic 250 Bon Air Road Greenbrae, California 400 Professional Center Drive, Suite 424 Novato, California 94947 415 448-1500 www.marinclinic.org Provides comprehensive primary healthcare services to uninsured and low-income residents in Marin. Mobilizes physicians, other healthcare providers, public agencies, and a network of community organizations to create an extensive healthcare delivery system serving more than 14,000 patients every year. Monthly Breast Health Days are held on the first Saturday of every month for Marin Community Clinic patients (low-income, underinsured or uninsured women from all ethnic groups). Participants receive clinical breast exams, breast health education, and a screening mammogram. Marin Community Food Bank 75 Digital Drive Novato, California 94949 415 883-1302 The “Brown Bag” serves low-income seniors (age 60 and over) twice a month. “Compassion in Action” provides food once a month to those in need and in long-term medical crisis situations. The Food Bank provides short-term “emergency food” for those who meet eligibility requirements.
Marin County Department of Health and Human Services 361 Third Street #E San Rafael, California 94901 415 507-4019 Provides various tests and medical services for a reduced cost or for free.
Marin Friends of Women Yolanda Gibson P.O. Box 2154 San Anselmo, California 94979 415 721-4612 Bilingual support and interpreting for Latina women suffering with breast cancer. Offers nutrition information and workshops on healthy cooking. Outreach in the Latina community to educate women on mammography and how to navigate through the health system. Marin Lymphedema Information and Support Group 1350 South Eliseo Greenbrae, California 94904 415 925-7787 or 924-1699 Meetings are usually held monthly at the Marin Cancer Resource and Recovery Center.
Marin Man to Man Corte Madera, California 415 459-3434 A drop-in free group open to any male whose partner has or had cancer. The breakfast group meets every Wednesday in Corte Madera.
Marin Orthopedic 479 Entrada Drive Novato, California 94947 415 883-3334 www.marinorthopedic.com A retail durable medical equipment store with certified fitters. Provides a full line of mastectomy and ostomy products and lymphedema sleeves. Matt’s Promise Foundation 973 467-1211 www.mattspromise.org Provides funding for treatment, research, education, and support programs for young adults affected by cancer.
Mautner Project for Lesbians with Cancer 866 628-8637 toll-free 202 332-5536 www.mautnerproject.org National organization dedicated to lesbians with cancer, their partners, and caregivers. Site provides education and information about cancer and advocacy on lesbian health issue in national and local arenas. Meals of Marin 1111 East Francisco Blvd. Suite B San Rafael, California 94901 415 457-4666 Prepares and delivers hot meals and bag lunches to homebound patients. Addresses special nutritional needs and restrictions.
Medicare 800 633-4227 toll-free www.medicare.gov Information about Medicare, including how to choose the right plan, billing information, search tools for various health services, and prescription drug coverage.
Medicare Rights Center 800 333-4114 toll-free hotline 212 869-3850 202 544-5561 www.medicarerights.org Largest independent source of healthcare information and assistance for people with Medicare. Helps older adults and people with disabilities get good affordable health care.
Medicine Online www.meds.com/leukemia Offers information and education on prescription oncology medicines. The Leukemia Information Center is an educational library for healthcare professionals and patients in the U.S. Melanoma International Foundation 866 463-6663 toll-free 610 942-3432 www.melanomaintl.org Mission is to ease the burden and bring hope to the journey of melanoma through patient support, early detection, education, and advocacy. Melanoma Research Foundation 800 673-1290 toll-free www.melanoma.org Mission is to support medical research for finding effective treatments and eventually a cure for melanoma, to educate patients and physicians about the prevention, diagnosis, and treatment of melanoma, and to act as an advocate for the melanoma community to raise the awareness of this disease and the need for a cure. Men Against Breast Cancer 866 547-6222 toll-free www.menagainstbreastcancer.org The first national organization designed to provide support services to educate and empower men to be effective caregivers when breast cancer strikes a female loved one, as well as to mobilize men to be active participants in the fight to eradicate breast cancer. Offers book For the Women We Love: A Breast Cancer Action Plan and Caregivers’ Guide for Men. Merck Patient Assistance Program 800 727-5400 toll-free Medication assistance
Merck Prescription Discount Program 800 506-3725 toll-free Medication assistance Meredith McCarthy Marin County, California www.healingcuisine.com Meredith is a holistic nutritionist, diet counselor, and nutrition educator. She is the author of three cookbooks including Sweet and Natural, winner of the Versailles World Cookbook Award. She is the former Associate Editor of Natural Health Magazine and Director of the East West Center for Macrobiotics for 19 years.
Mill Valley Health Club & Spa Mill Valley, Califiornia www.millvalleyhealthclub.com Miwok Livery Stables 701 Tennessee Valley Road Mill Valley, California 415 383-8048 www.miwokstables.com The Livery has given riding lessons and guided trail rides at Miwok Stables for 26 years. Residents of San Francisco and Marin, park visitors from the Bay Area, and tourists from near and far have enjoyed riding at Miwok. The Stable is located in an historic dairy barn built early in the last century by Portuguese settlers. Miwok Indians lived here for centuries before the valley became part of a Spanish land grant. Thje stables and surrounding thousand acres were purchased by the National Park Service in 1973 to become the Golden Gate National Recreational Area - a national park gem with unspoiled rural vistas, valleys, and wildlife hidden in a protected pocket, just minutes away from the urban landscape of San Francisco. Linda Rubio and her staff have been gracious in offering classes to cancer survivors. Nancy's List is working with Linda to have children and teens whose lives have been impacted by cancer in their families to consider horseback riding at Miwok Stables as a wonderful healing process.
Mommy’s Light 610 725-9790 www.mommyslight.org Mission is to bring joy and comfort to children and teens by helping them keep alive traditions or simple pleasures they shared with their mothers. Mothers’ Living Stories Project 2011 Cedar Street Berkeley, California 94709 510 466-5053 www.motherslivingstories.org Helps Bay Area mothers living with cancer audio-record a life story and personal legacy for their children. Another Morning: Voices of Truth and Hope from Mothers with Cancer by Linda Blachman, Project Founder, is based on the mothers’ stories and the work of the Project.
Mothers Supporting Daughters with Breast Cancer 410 778-1982 www.mothersdaughters.com Free support services designed to help mothers who have daughters battling breast cancer. Includes one-on-one support by mother volunteers who have experienced the same challenge.
Mouth Cancer Foundation www.mouthcancerfoundation.org Objective is the relief of sickness and the promotion and protection of good health among those suffering or at risk for mouth, throat and other head and neck cancers by the collation and dissemination of relevant information among the general public and by the provision of support to patients, caregivers, and health professionals. Multiple Myeloma Research Foundation 203 229-0464 www.multiplemyeloma.org MMRF supports research grants and professional and patient symposia on multiple myeloma and related blood cancers. Publishes a quarterly newsletter and provides links to other organizations. Naomi’s Hope for a Cure 800 366-CCCF toll-free www.hope4acure.net Mission to develop new ‘smart drugs’ to give children and adolescents hope for a future and a complete cure.
National Action Plan for Cancer Survivorship www.cdc..gov/cancer/survivorship A collaboration in 2002 of LIVESTRONG and the Centers for Disease Control and Prevention to lead a public health effort to address the issues faced by the growing number of cancer survivors. The project charts a course for the public health community to move effectively and comprehensively to address cancer survivorship with the goal of improving the quality of life for survivors across physical, emotional, and practical topics. In 2006, 2 addendums were added to the National Plan: African American Priorities and Native American Priorities. Stakeholders in each community participated in prioritizing the needs and topics contained in the original action plan and provided comments on each topic area. The resulting addendums provide a framework for actively addressing the needs of these diverse groups of cancer survivors.
National Alliance of Breast Cancer Organizations 888 806-2226 toll-free www.nabco.org A network of breast cancer organizations that provides information, assistance, and referrals. Acts as an advocate for the interests and concerns of breast cancer survivors and women at risk. National Asian Women’s Health Organization One Embarcadero Center, Suite 500 San Francisco, California 94111 415 773-2838 www.nawho.org NAWHO works to improve the health status of Asian women and families through research, education, leadership, and public policy programs. Designed and implemented national health promotion campaigns and programs on breast and cervical cancer.
National Association of Hospital Hospitality Houses Inc. 800 542-9730 toll free www.nahhh.org Offers information and a directory of organizations that provide lodging for families of those receiving medical care away from home. Contact them for more specific information.
National Association of Insurance and Financial Advisors 703 770-8100 www.naifa.org Provides information about disability and long-term care insurance. Contact information for health insurance agents in the area. Topics covered include health savings accounts, health insurance choices, COBRA coverage, Social Security, and a glossary of healthcare and insurance terms. National Bone Marrow Transplant Link 800 546-5268 toll-free 248 358-1886 www.nbmtlink.org Provides information and support services for bone marrow/ stem cell transplant patients including resource referrals and patient advocacy, telephone peer support, educational publications and videos. Offers a booklet Resource Guide for Stem Cell Transplant, Including Bone Marrow, Peripheral Blood, and Cord Blood: Friends Helping Friends, which lists support networks, donor information, financial resources, information about the transplant process, and practical issues and emotional concerns. National Brain Tumor Foundation 22 Battery Street, Suite 612 San Francisco, California 94111 800 934-CURE toll-free 415 834-9970 www.braintumor.org NBTF is dedicated to promoting a cure for brain tumors, improving the quality of life and giving hope to the brain tumor community by funding meaningful research and providing patient resources, timely information, and education. The Foundation conducts national and regional conferences, publishes printed materials for patients and family members, provides access to a national network of patient support groups, and awards grants to fund research. Some Spanish-language publications are available.
National Breast Cancer Coalition 800 622-2838 toll-free 202 296-7477 www.natlbcc.org NBCC is the nation’s largest grassroots breast cancer advocacy group with more than 600 member organizations and 79,000 members and supporters. Formed with one mission, to eradicate breast cancer through action and advocacy. Lobby at the national, state, and local levels for public policies that impact breast cancer research, diagnosis, and treatment. NBCC’s sister organization, the National Breast Cancer Coalition Fund, empowers and trains NBCC members to be effective in every aspect of the fight to end breast cancer. It gives women the tools to makes their own informed decisions and to work beside legislative, scientific and clinical policy makers. National Cancer Institute 800 422-6237 www.cancer.gov A component of the National Institute of Health, one of eight agencies that comprise the Public Health Service in the Department of Health and Human Services. Coordinates the National Cancer Program which conducts research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, treatment, rehabilitation, and the continuing care of patients and their families. The government's cancer information service can direct patients to local programs.
National Cancer Institute Cancer Information Services 800 422-6237 toll-free www.nci.nih.gov Offers an extensive listing of financial assistance programs for cancer care. National Cancer Institute Office of Cancer Complementary and Alternative Medicine 888 644-6226 toll-free www.cancer.gov/cam Mission is to improve the quality of care of cancer patients and those at risk for cancer and those recovering from cancer treatment by contributing to the advancement of evidence-based complementary and alternative practice and the sciences that support it as well as the availability of high-quality information for the health care community, researchers, and the general public.
National Cancer Institute Office of Cancer Survivorship www.dccps.nci.hih.gov.ocs The OCS provides extensive information to survivors, their families, healthcare providers, advocates, and the research community. One of the most useful sections is “Post-Treatment Resources: Follow-up Medical Care After Cancer Treatment” with fact sheets, tips, and access to adult and pediatric guidelines for care from selected organizations. National Center for Complementary and Alternative Medicine 888 644-6226 toll-free www.nccam.nih.gov The federal government’s lead agency for scientific research on complementary and alternative medicine. Mission is to explore complementary and alternative healing practices in the context of rigorous science, to train complementary and alternative medicine researchers, and to disseminate authoritative information to the public and professionals. National Cervical Cancer Coalition 800 685-5531 toll-free 818 909-3849 www.nccc-online.org A grassroots nonprofit campaign to educate the public about cervical cancer/HPV prevention, new screening and treatment options, and follow-up programs. Works to have young girls and women vaccinated to prevent this cancer. National Cervical Cancer Public Education Campaign 312 578-1439 www.cervicalcancercampaign.org Led by the Gynecological Cancer Foundation and supported by more than 30 national organizations engaged in informing the public about prevention, early detection and quality treatment of cervical cancer. National Children’s Cancer Society 314 241-1600 www.nationalchildrenscancersociety.org Mission is to improve the quality of life by providing financial and in-kind assistance, advocacy, support services, and education. National Children’s Leukemia Foundation 800 448-3467 toll-free 718 251-1222 www.leukemiafoundation.org Mission is to provide the cure and to ease the family’s burden during their hospital stay. The “Make a Dream Come True” program is designed to fulfill the dreams and wishes of young leukemia patients, both by answering their individual desires, and by arranging trips, outings, and private introductions that fulfill their dreams. National Coalition for Cancer Survivorship 877 622-7937 toll-free 301 650-9127 www.canceradvocacy.org The oldest survivor-led cancer advocacy organization in the country with the mission to address the full spectrum of survivorship issues of living with, through and beyond cancer. Pursues systemic changes at the federal level to influence how the government researches cancer and regulates, finances, and delivers cancer care. Publishes educational materials and develops online networks and tools on various aspects of survivorship. The Cancer Survival Toolbox is a free award-winning audio program that teaches skills that can help people with cancer meet the challenges of their illness. The Toolbox includes a Basic Skills set that covers six important topics: communicating, finding information, making decisions, solving problems, negotiating, and standing up for your rights. The Toolbox includes four additional programs that cover topics for older persons, finding ways to pay for care, caring for the caregiver, and living beyond cancer. Program is available in Spanish and Chinese (transcript only). Cancer: Keys to Survivorship is a free program that teaches participants how to be pro-active about their health. Cancer Advocacy Now! is a grassroots legislative network that advocates for cancer-related issues such as better access to high-quality therapies, care, and clinical trials, Medicare coverage and reimbursement for anti-cancer drugs and treatments, and better palliative and end-of-life care. A Cancer Survivor’s Almanac contains information on employment discrimination, health insurance, financial planning, communicating with family and friends, and advocacy. National Collegiate Cancer Foundation 717 215-0943 www.collegiatecancer.org Sponsors an annual non-renewable $1,000 scholarship for college students whose lives have been impacted by cancer and who are seeking to continue their higher education while still undergoing treatment. Applicants must be college students between the ages of 17 and 27. Recipients are selected on the basis of financial need, an essay, recommendations, cancer story of survivorship, and demonstrating a “Will Win” attitude. National Colorectal Cancer Research Alliance 213 240-3900 www.www.eiffoundation.org/national/nccr A program of the Entertainment Industry Foundation dedicated to the eradication of colorectal cancer by promoting the importance of early medical screening and funding research to develop better tests, treatments, and ultimately a cure. National Comprehensive Cancer Network 215 690-0300 www.nccn.com An alliance of 19 of the world’s leading cancer centers. An authoritative source of information to help patients and health professionals make informed decisions about care. Dedicated to providing state-of-the-art care to patients, advancing research on prevention, and enhancing the effectiveness of cancer care delivery. Develops, updates, and disseminates a complete library of clinical practice guidelines. National Family Caregivers Association 800 896-3650 toll-free 301 942-6430 www.thefamilycaregiver.org Addresses the needs and concerns of all family caregivers. National Foundation for Credit Counseling 800 388-2227 toll-free www.nfcc.org A coalition of nonprofit consumer credit counseling services which provides confidential financial counseling for people having trouble managing their expenses.
National Hospice and Palliative Care Organization 800 658-8898 toll-free helpline 703 837-1500 www.nhpco.org NHPCO is a membership organization representing programs and professionals that provide hospice and palliative care in the U.S. The mission is to lead and mobilize social change for improved care at the end-of-life. Offers publications, information about how to find a hospice, and information about the financial aspects of hospice. Maintains a consumer-focused website called Caring Connections (www.caringinfo.org) that provides a wide range of free materials about hospice, palliative care, advance care planning, caregiving, etc. Some Spanish-language publications are available.
National Lung Cancer Partnership www.nationallungcancerpartnership.org Formerly Women Against Lung Cancer. The only national lung cancer organization founded by physicians and researchers. Mission is to decrease deaths due to lung cancer and help patients live longer and better through research, awareness, and advocacy.
National Marrow Donor Program 800 627-7692 toll-free 888 999-6743 toll-free Office of Patient Advocacy www.marrow.org NMDP is funded by the Federal Government to improve the effectiveness of the search for bone marrow donors. It maintains a registry of potential bone marrow donors and provides free information on bone marrow transplantation, peripheral blood stem cell transplant, and unrelated donor stem cell transplant. The Office of Patient Advocacy assists patients and physicians through the donor search and transplant process by providing information, referrals, support, and advocacy. The Marrow Foundation Patient Assistance Program provides financial assistance to help patients pay for transplant costs. National Organization for Rare Disorders 800 999-6673 www.raredisease.org A nonprofit group of health organizations that work with people who have rare diseases. Sponsors a medication assistance program for uninsured and underinsured individuals.
National Ovarian Cancer Coalition 888 682-7426 toll-free 561 393-0005 www.ovarian.org NOCC raises awareness about ovarian cancer and promotes education about the disease. Provides a toll-free number for information, referrals, support, and education. Offers support groups, a national newsletter, a link to a database of gynecological oncologists, and educational materials on symptoms, risk factors, and treatment. A limited selection of Spanish-language publications is available.
National Pancreas Foundation 866 726-2737 toll-free 617 578-0382 www.pancreasfoundation.org Mission is to support the research of diseases of the pancreas and to provide information and humanitarian services to those people who are suffering from such illnesses.
National Patient Travel Center 800 296-1217 toll-free www.patienttravel.org NPTC provides a helpline for assistance locating air transportation for patients who need specialized medical evaluation, diagnosis, or treatment in distant locations. Provides referrals to all major medical transport providers in the network. Some air services arrange free air transportation for cancer patients and bone marrow donors going to and from cancer treatment centers. Others provide a free air ambulance for patients requiring medical care during the flight.
National Prostate Cancer Coalition 888 245-9455 toll-free 202 463-9455 www.fightprostatecancer.org Mission to reduce prostate cancer through awareness, outreach, and advocacy. Native American Cancer Research Corp. 303 838-9359 www.natacancer.org Dedicated to helping improve the lives of Native American cancer patients and survivors. Seeks to reduce Native American cancer incidence and mortality, and to increase survival from cancer among Native Americans. Native American Cancer Survivors Support Network 800 537-8295 toll-free 303 325-3377 An educational community-based research study to help improve the quality of cancer care and the quality of life for all American Indian, Alaska Native, and First Nations cancer patients and their loved ones. The network objectives include: to learn more about who is getting cancer in Indian Country and what type of care they are receiving; to help Native cancer patients get the quality cancer care before and after their diagnosis; to identify quality of life issues from a Native survivor’s view point; to encourage the development of survivor programs in local communities; and to improve communication between survivors, their loved ones, and health care providers.
Native People’s Circle of Hope www.nativepeoplescoh.org A coalition of Native American cancer support groups who share the mission to provide hope, an improvement of communication, support, education, and advocacy for the cancer survivor.
Navigating the New Normal 215 955-8370 www.kimmelcancercenter.org A new program of The Kimmel Cancer Center to help young adults navigate the ‘new normal’ that a cancer diagnosis brings. Needy Meds 334 662-0023 www.needymeds.com A nonprofit clearinghouse for free information about getting medications from pharmaceutical company patient assistance programs. This site also provides articles of interest such as safety updates and information related to Medicaid and Medicare Part D. Next Step Fund 617 864-2921 www.nextstepnet.org Provides retreats, camp excursions, creative workshops, and social networking for young adults facing cancer.
Nicki Leach Foundation 904 304-8531 www.nickileach.org Offers high school and college students (16-25) with cancer the opportunity to enjoy normal or unusual activities they might otherwise not be able to afford. Funding for car expenses, clothing, and hair or make-up costs as well as special funding that might include a special trip, a camera, a computer, or cell phone. Goal is to give the teens and young adults the things they would not normally ask for but would love to receive, so that they may enjoy life while undergoing treatment for their disease. Nordstrom – Corte Madera 1870 Redwood Hwy Corte Madera, California 94925 415 927-1690 www.nordstrom.com The lingerie department offers custom breast prostheses, garments, swimwear and bras fitted by certified staff.
Northern California Cancer Center www.nccc.org Resource guides and fact sheets, including estate planning, support groups for breast cancer, and a guide for employers with employees affected by cancer. Also a clearinghouse for cancer demographic information. Releases an annual cancer incidence and mortality report. Nancy Holland Marin County, California www.nourishbynancy.com Through training in Holistic Nutrition and Organic Culinary Arts and extensive work with cancer patients, Chef Nancy Holland is experienced in providing personal chef services tailored to minimize the symptoms caused by radiation and chemotherapy. Nancy, a certifed Natural Chef, is a graduate of The Bauman College of Holistic Nutrition and Organic Culinary Arts in Berkeley. She has also studied the culinary arts in Italy, Greece, Thailand, and Turkey. In addition to her culinary training, Nancy completed a one-year internship in Integrative Medicine at The Institute of Health and Healing at California Pacific Medical Center in San Francisco. She has worked with medically-challenged individuals, particularly cancer patients, and focuses on diet and alternative healing tehniques to reduce anxiety, improve sleep, and promote personal harmony.
Novartis Patient Assistance Program 800 282-7630 toll-free Medication assistance Novato Human Needs Center 1907 Novato Blvd. Novato, California 94947 415 897-4147 www.nhnc.org Emergency food and food vouchers, clothing, assistance with housing costs, employment services, counseling, parenting educational programs, information and referrals, and transportation. Serves Novato residents only. Services available in Spanish.
Nueva Vida 202 223-9100 www.nueva-vida.org Mission is to inform, support, and empower Latinas whose lives are affected by cancer, and to advocate for and facilitate the timely access to state-of-the-art cancer care, including screening, diagnosis, treatment and care for all Latinas.
OncoLink.org 212 662-7979 www.oncolink.org Comprehensive current information about specific types of cancer, updates on treatments, and news about research advances. Includes a special section, Financial Issues for Patients that provides information on reimbursement assistance programs. In collaboration with the Abramson Cancer Center at the University of Pennsylvania. Oncology Nursing Society 866 257-4667 toll-free 412 859-6100 www.ons.org The largest professional oncology association in the world (over 35,000 registered nurses and other healthcare providers) dedicated to excellence in patient care, education, research, and administration. One Bite at a Time: Nourishing Recipes for People with Cancer, Survivors, and their Caregivers Rebecca Katz, Marsha Tomassi, Mat Edelson Berkeley CA: Celestial Arts Publishing Company, 2004 (See Rebecca Katz).
Oral Cancer Foundation 949 646-8000 www.oralcancerfoundation.org OCF is a nonprofit organization dedicated to saving lives through education, research, prevention, advocacy, and support. Provides an online Oral Cancer Forum, which includes a message board and chat room that connects newly diagnosed patients, family members, and the public. Site provides information about the rates of occurrence, risk factors, signs and symptoms, treatments, and current research. Osher Center for Integrative Medicine 1701 Divisadero Street, Suite 150 San Francisco, California 94115 415 353-7700 www.osher.ucsf.edu The mission is to search for the most effective treatments by combining conventional and alternative approaches that address all aspects of health and wellness: biological, psychological, social, and spiritual. They are working to transform healthcare by conducting rigorous research on the medical outcomes of complementary and alternative healing practices; educating medical students, health professionals, and the public about these practices; and creating new models of clinical care.
Outlook – Life Beyond Childhood Cancer www.outlook-life.org Focus is to address the needs of survivors of childhood cancer and their families. Offers many practical resources, emotional support, and links to camps, books, and websites.
Ovarian Cancer National Alliance 800 535-1682 toll-free 202 331-1332 www.ovariancancer.org OCNA works to increase public and professional understanding of ovarian cancer and to advocate for research to determine more effective ways to diagnose, treat, and cure this disease. Activities include an annual national conference, a public education program targeted to women and primary care physicians, and training programs to help survivors become effective advocates and spokespeople for the disease. The OCNA Clinical Trials Matching Service provides links to clinical trial options. Ovarian Cancer Research Fund, Inc. 212 268-1002 www.ocrf.org Strives to find an early diagnostic tool and a cure, to support patients and their loved ones in understanding this disease and its treatment, and to provide outreach programs and raise public awareness. Pancreatic Cancer Action Network 877 272-6226 toll-free 310 725-0025 www.pancan.org Educates professionals and the public about pancreatic cancer. Services provided include Patient and Liaison Services, a comprehensive free call-in information program, the Survivor and Caregiver Network, support groups, conferences and telephone workshops. PanCan advocates for increased funding for research and promotes access to the latest medical advances, support networks, clinical trials, and reimbursement for care. Provides funding for pancreatic cancer research.
Pancreatic Cancer Study Group at M.D. Anderson Cancer Center www.mdanderson.org/Departments/Pancreatic Information about news of the Study Group, about survivors, and clinical trials Pancreatica.org www.pancreatica.org The latest news and information in regard to clinical trials and other responsible medical care in the treatment of pancreatic cancer. Aim is to present impartial knowledge to give a sense of the range of existing treatment options, to aid patient/doctor partnerships, and thus to help optimize personal treatment strategies. Partnership for Prescription Assistance 888 477-2669 www.pparx.org An organization of pharmaceutical companies, doctors, healthcare providers, patient advocacy groups and community organizations. Helps uninsured or underinsured individuals to find programs that offer free or nearly free prescription medicines. You can also print applications for the programs for which you qualify. Information is available in Spanish. Patient Access Network Foundation 866 316-7263 toll-free www.patientaccessnetwork.org Dedicated to improving access to needed health services for insured patients who cannot afford the out-of-pocket costs associated with their treatment. Patient Advocate Foundation 800 532-5274 toll-free 866 512-3861 toll-free Co-Pay Relief Program 757 873-6668 www.patientadvocate.org www.copays.org Provides education and legal counseling about managed care, insurance, job discrimination, and financial issues for cancer patients. Serves as an active liaison between the patients and their insurers, employers, and creditors to resolve insurance, job discrimination, and debt crisis matters relative to their diagnosis through case managers and attorneys. The Co-Pay Relief Program provides limited payment assistance for medicine to insured patients who financially and medically qualify. Patient Advocate Foundation’s Scholarships for Survivors 800 532-5274 toll-free www.patientadvocate.org Scholarships for cancer survivors to initiate or complete a course of study that has been interrupted or delayed by a diagnosis of cancer. Recipients must maintain a GPA of at least 3.0 on a 4.0 scale and complete 20 hours of community service during the school year. Patient Services Inc. 800 366-7741 toll-free www.uneedpsi.org Assists patients in accessing health insurance coverage (COBRA) and pharmacy co-payment assistance. Patti Boro MFT San Rafael, California www.pattiboro.com Patti works with children, teens, adults, and couples in her psychotherapy practice. She has dralth with cancer in her family.
Patti Breitman Marin County, California 415 258-4669 Patti is the founder of the Marin Vegetarian Education Group and teaches vegan cooking classes through the San Anselmo Recrestion Department. She offers her classes for free to Nancy's List members. Pearls of Hope The Lorraine Jackson Foundation 310 753-6556 www.pearlsofhope.com The primary mission is to provide scholarships for secondary education for children who have lost a parent to breast cancer. Pediatric Brain Tumor Foundation 800 253-6530 toll-free 828 665-6891 www.pbtfus.org Seeks to find the cause of and cure for brain tumors in children by supporting medical research, increasing public awareness of the disease, and aiding in early detection and treatment of childhood brain tumors. Supplies educational resources to families, medical professionals, and the public. Also has an educational scholarship program for pediatric brain tumor survivors. Peller Marion Marin County, California www.pellermarion.com Peller offers career assessment sessions for anyone living with cancer or someone who is taking a hiatus from working in a corporation or the business world.
Penny Jay Funds 1350 South Eliseo #140 Greenbrae, California 94904 415 925-7920 Provides funding for screening mammograms for those women who are uninsured. People Living with Cancer 888 651-3038 toll-free 703 519-2927 www.peoplelivingwithcancer.org Patient information website of the American Society of Clinical Oncology, the world’s leading organization representing medical professionals who treat people with cancer. Provides oncologist-approved information on more than 50 types of cancer and their treatments, clinical trials, coping, and side effects. Additional resources include Find an Oncologist database, live chats, message boards, a drug database, and links to patient support organizations.
Pfizer Connection to Care 866 776-3700 toll-free Medication assistance Pilates of Marin/ Pilates Wellness Institute 500 Tamal Plaza, Suite 503 Corte Madera, California 415 927-7800 www.pilatesofmarin.com www.pilateswellnessinstitute.org Pilates of Marin offers two separate programs for individuals during all phases of cancer treatment. The first program is for breast cancer patients and is sponsored by The Marin Cancer Institute and To Celebrate Life Breast Cancer Foundation. The second program provides subsidized training for individuals with other types of cancer. The non-profit organization, Pilates Wellness Institute, was established by Shelley Ballestrazze, the owner of Pilates of Marin. Mary Russell has worked with cancer patients for 2 years and is a certified Pilates Instructor with additional training in special conditions. She is also a certified Cancer Exercise Specialist.
Pine Street Chinese Benevolent Association 124 Pine Street San Anselmo, California 94960 415 485-0484 www.pinest.org Home of the Pine Street Clinic. In addition to seeing thousands of patients, PSCBA has also launched numerous educational initiatives. Such programs include establishing the California Association for Acupuncture Tutorials, an education advocacy group; lecturing on Chinese medicine to audiences both at home (Marin General Hospital, UCSF, UC Berkeley, Marin Jewish Community Center, Alta Bates Hospital, the American Cancer Society) and abroad (in China, Germany, England, Switzerland, and Denmark); inventing PulsImagery, a computer-based Chinese pulse diagnostic system; publishing articles and books; hosting a study group for classic Chinese texts, including the Dream of the Red Chamber and the Nan Jing; producing a play about and translating the formulas of Doc Hay, one of the first doctors of Chinese Medicine in the United States; and maintaining one of the largest private libraries of Chinese medical journals and texts in California.
Pine Street Foundation 124 Pine Street San Anselmo, California 94960 415 455-5878 www.pinestreetfoundation.org Founded in 1989, the Pine Street Foundation’s mission is to help people with cancer reach more informed treatment decisions through education and research. This is accomplished through educational events and our “Becoming Your Own Advocate” series of articles along with meta-analysis of medical literature from around the globe and through the design and implementation of innovative clinical trials. Critical to our efforts is our emphasis on ensuring the highest scientific quality of our research designs and trial date. By publishing the results of our work in reputable medical journals, we are able to make the results of our efforts widely available to other researchers, practitioners, and patients. Planet Cancer 512 452-9010 www.planetcancer.org Award-winning young adult community offering survivor retreat programs, social networking, and online forums with real world advice and inspiring stories. Planned Parenthood Federation of America 801 Montgomery Street San Francisco, California 94133 800 230-7626 toll-free Offers gynecological care, Pap tests, and breast exams. Some clinics offer the HPV vaccine to protect against contracting the Human Papilloma Virus that has been associated with cervical cancer, vulvar cancer, and penile cancer. Call toll-free number to determine if your local clinic provides these services.
Pop Smear 978 744-5300 www.theyellowumbrella.org Educates and raises awareness about cervical cancer through advocacy and international benefit concerts featuring survivor musicians. Prepare to Live www.preparetolive.org Uses the web and documentary-style filmmaking to provide hope, help, information, and inspiration specifically to young adults worldwide coping with cancer. Prevencion, Inc. www.prevencion.org Committed to enhancing the health of Latinos by educating and motivating them to engage in preventive health practices. Strives to produce and distribute high-quality Spanish-language health information that is culturally sensitive, ethnically appropriate, and scientifically accurate. Focuses communication efforts to reach Latinos with limited literacy, income, and access to quality health information. Prevent Cancer Foundation 800 227-2732 toll-free 703 836-4412 www.preventcancer.org The Prevent Cancer Foundation was started in 1985. It is one of the leading health organizations and has catapulted cancer prevention to prominence.Through healthy lifestyle choices, you can reduce your risk of many types of cancer.The Foundation has provided more than $106 million in support of cancer prevention and early detection research, education and community outreach programs. The Foundation's peer-reviewed grants have been awarded to more than 300 scientists from more than 150 of the leading academic medical centers nationwide. This research has been pivotal in developing a body of knowledge that is the basis for important cancer prevention and early detection strategies. Assistance in Spanish is available.
Prostate Cancer Education Council www.pcaw.org Educates men, women, and the medical community about the prevalence of prostate cancer, the importance of early detection, treatment options, and other men’s health issues.
Prostate Cancer Foundation 800 757-2873 toll-free 310 570-4700 www.prostatecancerfoundation.org Advocates for greater awareness of prostate cancer and provides funding for research projects to improve methods of diagnosing and treating prostate cancer and finding a cure. The world’s largest philanthropic source of support for prostate cancer research. Free publications about detection and screening, research, clinical trials, and nutrition. The Report to the Nation on Prostate Cancer: A Guide for Men and their Families highlights key issues that men with prostate cancer face. Prostate Cancer Support Group Marin General Hospital Medical Library Greenbrae, California 94904 415 459-4668 www.prostatelab.com/supcamar.htm Men meet every week to share their experiences, discuss current and new therapies, and offer support and understanding. The participants are newly diagnosed men and those who have already had therapy. Significant others are very welcome to attend.
Prostate Net 888 477-6763 toll-free www.prostate-online.org Provides credible and actionable information, using a blend of cancer survivors, renowned cancer clinicians, researchers, and corporate sponsors to enable patients, their families, and health professionals to partner in making the appropriate choices to assure the best chance for cure and retention of the desired quality of life.
PubMed www.pubmed.gov The largest, most comprehensive medical database in the world produced by the U.S. National Library of Medicine with access to professional biomedical and some selected health-related lay journals. Coverage includes all aspects of medicine, research, integrative medicine, and allied health. Use by a novice searcher is facilitated by a powerful search engine interface and an excellent online tutorial. Quan Yin Healing Arts Center 455 Valencia Street San Francisco, California 415 861-4964 www.quanyinhealingarts.com Alternative and holistic healing services including on-site nursing, Chinese herbal medicine, natural therapies, affordable acupuncture, massage, nutritional supplements, yoga, and Qigong. Sliding scale.
R.A. Bloch Cancer Foundation, Inc. 800 433-0464 toll-free 816 854-5050 www.blochcancer.org Goal is to support patients with information, moral support, and resources. Matches newly diagnosed people with trained, home-based volunteers who have been treated for the same type of cancer. Provides list of institutions that offer second opinions. Funds cancer survivor parks in metropolitan areas across the country.
Rachel Naomi Remen Workshops www.rachelremen.com Dr. Rachel Naomi Remen is the author of the bestselling books, Kitchen Table Wisdom and My Grandfather’s Blessings. She offers workshops for physicians and health professionals, as well as for people living with cancer and their families. Rebecca Katz, MS Marin County, California www.innercook.com Rebecca holds an MS degree in nutrition and is a graduate of the Natural Gourmet Institute for Health and Culinary Arts. She is the founder of the Inner Cook, a culinary business focused on teaching individuals and communitieis how to make healthy connections with food. She is a senior chef at the Commonweal Cancer Help Program. Rebecca is the author of One Bite at a Time: Nourishing Recipes for Cancer Survivors and their Friends.
Redes en Accion 3333 California Street, Suite 335F San Francisco, California www.redesenaccion.org The National Latino Cancer Research Network is a National Cancer Institute-funded initiative to combat cancer among Latinos. A nationwide network of community-based organizations, research institutions, government health agencies, and the public. Core activities include promoting training and research opportunities for Latino students and researchers, generating research projects on key Latino cancer issues, and supporting cancer awareness activities within the Latino community. Provides online Latino Cancer Experts Directory. Reeling and Healing Midwest 866 237-5725 toll-free 616 855-4017 www.reelingandhealingmidwest.org Offers fly-fishing retreat programs for women diagnosed with or surviving cancer. The mission is to renew spirit and hope through fly-fishing, nature, peer coaching, positive camaraderie, and support. Regan Fedric San Francisco and Marin County, California 415 359-3825 Rfedric13@msn.com Regan is a Certified Cancer Exercise Specialist and Fitness Instructor. She is associated with Bay Club Marin and San Francisco and Sunflower Wellness.Regan insturcts individuals and groups. In her Strength and Balance group class for cancer survivors, Regan focuses on improving physical functioning, reducing feelings of fatigue, depression, and nausea, improving mental well-being and enhancing one's ability to perform daily tasks. Her students notice positive changes in their energy levels, muscular strength, and joint flexibility as well as their renewed sense of confidence, mood, and quality of life. She works on core strength, balance, and stability.
Reverend Gwenievere Maria Marin County, California www.spiritualhealinginc.org Rev. Maria is the founder and president of the Center for Spiritual Healing Inc., a Transformational School for Healers. She is an author and world-renowed healer, clairvoyant, and psychic medium in the fields of shamanism and spiritual awarenes.. Ritter House 16 Ritter Street San Rafael, California 94901 415 457-8182 www.rittercenter.org Emergency financial assistance for rent and housing deposits, primary health care, clothing, counseling, car repairs, eyewear, medications, and other special needs. Emergency food pantry available. Road to Recovery 800 227-2345 toll-free www.cancer.org American Cancer Society program provides ground transportation for people living with cancer to their treatments and home again. Transportation can be arranged by contacting the local ACS office. Robert Adamich DC Marin County, California www.AConsortiumForHealth.com Robert has worked with many cancer patients during their healing journeys, offfering his expertise as a chiropractor.
Rock Solid Fitness SF San Francisco, California www.RockSolidSF.com Teresa Marchese offers amazing fitness programs as well as a week-long detox cleanse.
Ronald McDonald House Charities 630 623-7048 San Francisco, California 415 673-7048 www.rmhc.org Provides three core programs: Ronald McDonald Houses provide lodging for families of seriously ill children receiving treatment at nearby hospitals; Ronald McDonald Family Rooms in hospitals serve as places to escape stress; and Ronald McDonald Care Mobiles bring cost-effective medical, dental, and health education services directly to underserved children in both rural and urban areas. Ross Valley Pharmacy 2 Bon Air Road #130 Larkspur, California 94939 415 924-2454 Compression garments, sleeves, gauntlets, gloves, and bras for the treatment of lymphedema. Custom fitting and standard sizes available.
Ruth Martin, MS MFT Marin County, California www.marincamft.org www.therapists.psychologytoday.com/60091 A psychotherapist who specializes in work with cancer patients and their families. Her goal is to create a safe supportive environment where her client can share explore, and grieve. Her style is interactive, warm, and compassionate. Her approach is tailored to meet the person's needs and goals and especially to bring forth one's resilience and strengths.
Rx Assist 401 729-3284 www.rxassist.org A pharmaceutical access information center created by Volunteers in Health Care, a national resource center for safety net organizations. Provides a comprehensive database of pharmaceutical company patient assistance programs and extensive resources on using and understanding these programs. Rx Help for Californians 877 777-7815 toll-free Provides medications for children less than 18 years of age in low-income, uninsured families through the United Way. Ryan Mullaly Second Chance Fund – A Scholarship Fund for Cancer Warriors 609 737-1800 www.ryans2dchancefund.org Offers a $1,000 scholarship for cancer survivors who are U.S. citizens or permanent residents, who have been diagnosed with cancer between the ages of 13 and graduation from high school, who were under active treatment for cancer while in high school (resulting in a substantial impact on their ability to attend class, take the SATs, etc.), who have a treatment history which includes chemotherapy and/or radiation, and currently are 22 years or younger and enrolled in a degree program at an accredited 2-year or 4-year college or an accredited post-secondary vocational or trade program which will culminate in certification. Graduate school programs are not eligible. Sally Chang, L.Ac., DNBAO Marin County, California www.SallyChang.com acu@sallychang.com 415 450-8071 Sally Chang specializes in acupuncture for acute and chronic pain, digestive and sleep disorders, and stress management. She believes our ailments can be a resource for deep healing of the mind, body, and spirit. Sally does Qi Gong with her clients which she views as a key into the body's intrinsic energy for improved health, mental clarity, and stress reduction. Sally also includes TaiJi Chuan in her healing practices, a system which improves posture, balance, and deepens understanding of our somatic intelligence.
SAMFund: Surviving and Moving Forward 617 780-9606 www.thesamfund.org Offers financial support through grants and scholarships to young adults as they transition into their post-treatment lives. Sanofi Aventis Reimbursement Program 800 996-6626 toll-free Medication assistance Sarcoma Alliance 775 East Blithedale #334Mill Valley, California 94941 415 381-7236 www.sarcomaalliance.org Extends and improves the lives of sarcoma patients through accurate diagnosis, improved access to care, education, and support.
Sarcoma Foundation of America 301 253-8687 www.curesarcoma.org Advocates for increased research to find new and better therapies with which to treat patients with sarcoma. Raises funds to provide research grants to sarcoma researchers. Interacts with public and private organizations to raise awareness of the treatment needs of sarcoma patients. Sean Kimerling Testicular Cancer Foundation 877 609-2690 toll-free 914 316-5398 www.seankimerling.org Raises public awareness about testicular cancer and the importance of self-examination. Senior Access 1905 Novato Blvd. Novato, California 94947 415 897-6884 www.senioraccess.org Mission is to assure that seniors and other adults with chronic health needs are able to remain independent and in their homes for as long as possible.
SHARE 866 891-2392 toll-free hotline 212 719-0364 www.sharecancersupport.org Supportive network and community of women affected by breast or ovarian cancer, providing opportunities for them to be more in control of their lives during and after a diagnosis. Iinformation hotlines in English and Spanish, public education, advocacy, and wellness programs. The National Breast Cancer Coalition Fund selected SHARE as one of four winners of the 2007 Best Practices in Breast Cancer Advocacy Awards. Sharsheret 866 474-2774 toll-free www.sharsheret.org Survivor-led national organization addresses the concerns of young Jewish women facing breast cancer. Education, outreach, and a peer support network connecting young women newly diagnosed or at high risk of developing breast cancer with others who share similar diagnoses and experiences. Siblinks www.siblinks.org Network for young people (13 to 25 years) who are siblings or children of people affected by cancer. Sisters Network Inc. 866 781-1808 toll-free 713 781-0255 www.sistersnetworkinc.org Increases local and national attention to the devastating impact that breast cancer has in the African-American community. Individual and group support, community education, advocacy, and research. National outreach program includes the Gift for Life Block Walk, the Pink Ribbon Awareness Initiative, and the annual African American Breast Cancer Conference. Teleconferences, educational brochures, and newsletters.
Sister Study 877 474-7837 toll-free www.sisterstudy.org A national long-term study of the environment and genetic risk factors for breast cancer of women aged 35 to 74 whose sister had breast cancer. Skin Cancer Foundation 800 754-6490 toll-free www.skincancer.org The only international organization devoted solely to combating the world’s most common cancer. Mission is to reduce the incidence of skin cancer through public and professional education, medical training, and research. Provides essential information on prevention by means of sun protection and the need for early detection and prompt effective treatment. Social Security Administration 800 772-1213 toll-free www.ssa.gov Provides information, applications, and assistance for Medicare, disability, and other government benefits.
Society of Gynecological Oncology 312 235-4060 www.sgo.org Purpose is to improve the care of women with gynecologic cancers by encouraging research and disseminating knowledge to raise the standards of practice and treatment.
Sol Goldman Pancreatic Cancer Research Center at Johns Hopkins www.path.jhu.edu/pancreas Provides extensive information about pancreatic cancer, including news on Hopkins research findings, a bibliography, and details about genetic testing. Stand Up to Cancer Initiative raises awareness and fundsto accelerate ground-breaking research that will get new therapies to patients quickly. Launched in May of 2008, SU2C is a program of the Entertainment Industry Foundation, and draws on the industry's resources in the fight against the disease as never before. On September 5, ABC, CBS, and NBC donated airtime for the first-ever 3-network simultaneous broadcast of a fundraising special aimed at rallying the public around the goal of defeating cancer. http://www.standup2cancer.orgStanford Comprehensive Cancer Center www.cancer.stanford/edu Offers a full range of medical and support services in one serene setting, including a multidisciplinary cancer clinic, a radiation therapy suite, an infusion center open 7 days a week, breast imaging and diagnostic radiology units, a cancer concierge, the “Patient’s Journey,” nutritional services, a patient resource center, a cancer supportive care program, clinical research office, and a conference center. Provides integrative services that complement cancer therapy, including informational lectures, support groups, chair massage, nutrition counseling, restorative yoga, medical Qigong, imagery, Feldenkrais, energy healing, chemotherapy and fatigue workshops, videos and newsletters. Starlight Starbright Children’s Foundation 800 315-2580 toll-free 310 479-1212 www.starlight.org Provides programs that address the social, emotional, and medical aspects for children and teenagers living with a serious illness. Programs empower children and families to take charge of their illness, play a more active role in their treatment, and better cope with the challenges that accompany prolonged illness. Online community provides information and support to help parents care for their seriously ill child. There is a new edition each month featuring information for caregivers and healthcare professionals. Topics include managing finances, knowing your rights in school and insurance systems, and communicating with doctors. Offer message boards for parents to share their experiences and gain support from each other. Staying Alive! Cookbook for Cancer Free Living: Real Survivors …. Real Recipes … Real Results Sally Errey, Trevor Simpson Vancouver: Bellissimo Books, 2004 Stephanie Bridwell MS DC Marin County, California www.MagnoliaChiropracticCenter.com Stephanie specializes in gentle spinal adjustments. She also offers Kali Ray Triyoga, nurturing massage, and nutritional testing. Stephanie Rosenblatt Mill Valley, California 415 380-9336 Stephanie specializes in stress reduction in her method, Mind Over Matters. Her B.A.L.M. formula soothes stress and creates balance in your life. Stephanie also teaches a spiritual restorative yoga class that brings mindfulness to every asana by using the energy of the breath to create stretch and inner healing. Stephanie is a certified Integral Yoga Instructor who believes in the power of gentle movements. For over 20 years, she has helped her students become more aware of their inner soul-filled landscapes.
Stephen T. Marchello Scholarship Foundation 303 886-5018 www.stmfoundation.org Post-secondary scholarships for survivors of childhood cancer, specifically current high school graduates. Stop Colon Rectal Cancer Foundation 847 375-5775 www.coloncacnerprevention.org Goal is the saving of over 40,000 lives per year through public awareness initiatives that broaden the use of preventive screening and early detection of colon and rectal cancer, and encourage healthier lifestyles. Studio International 2850 22nd Street San Francisco, California 94110 415 641-9447 www.studiohair.net A salon specializing in hair loss. Licensed staff provides complete service, including custom hair color matching. Complete online catalog service.
SuperSibs! 866 444-7427 toll-free 847 705-7427 www.supersibs.org Honors, supports, and recognizes brothers and sisters of children and adolescents with cancer through scholarship programs, educational materials, support, parenting resources, and more.
Support for People with Oral and Head and Neck Cancer 800 377-0928 toll-free www.spohnc.org Provides current information to patients who are trying to gain a better understanding of their illness and their lives. Offers a newsletter News from SPOHNC with information from research institutes, cancer centers, governmental agencies, support groups, and patients. Provides a booklet We Have Walked in Your Shoes which gives general information about head and neck cancer, radiation and chemotherapy and dental care. Supports individuals interested in starting new local support groups. Survivor Alert 937 767-1924 www.survivoralert.org A nationwide campaign to spread the word about what young adult childhood cancer survivors can do to stay healthy as they rebuild their lives after treatment. Survivor’s Guide to Reversing Cancer: A Journey from Cancer to Cure Gerald H. Smith Langhorne, PA: International Center for Nutritional Research, 2004 Survivors of Childhood and Adolescent Cancer: A Multidisciplinary Approach Cindy L. Schwartz Berlin: Springer, 2005
Susan G. Komen for the Cure 877 465-6636 toll-free 800 462-9273 toll-free helpline www.komen.org For more than 20 years, a global leader in the fight against breast cancer through its support of innovative research and community-based outreach programs. World’s largest network of breast cancer survivors and activists fighting to save lives, empower people, ensure quality care for all, and energize science to find the cures. Website includes information on Komen Race for the Cure. Susan G. Komen for the Cure College Scholarship Award Program 877 465-6636 toll-free www.komen.org College scholarships of up to $10,000 a year over a 4-year period. Applicants must have lost a parent to breast cancer, be a high school graduate or a high school student who will graduate by June 2008 or have received the equivalent of a high school diploma (current college students are eligible), plan to attend a state-supported college or university in the state where they permanently reside, have a college GPA of 2.8 on a 4.0 scale (if already attending college), be no older than 25 years by June 2008, and be a U.S. citizen or documented permanent resident of the U.S. Taking Refuge 1122 Magnolia Avenue Larkspur, California 94939 415 461-6497 www.takingrefuge.org Offers care and personalized programs to the local community of individuals stricken with cancer. Provides free access to the healing experience of Oriental Medicine, supporting both their physical and emotional body through Acupuncture, Medical Qi Gong, Herbal Medicine and Nutritional Support.
Tamalpa Institute Kentfield, California 415 457-8555 www.tamalpa.org Programs in the Halprin Process, a movement-based expressive arts approach that integrates movement/dance, visual arts, performance techniques, and therapeutic practices. This approach supports personal, interpersonal, and social transformation, teaching new models for health, psychology, art, and communication. The institute is a nonprofit organization and provides one of the most renowned movement-based healing arts programs in the world. TAPS (Tina Action Programs) Gay Cain P.O. Box 807 Woodacre, California 94973 415 488-9204 Grass-roots organization representing West Marin. Established in 2000 in response to the high rates of breast cancer in local communities and to the death of a friend, Tina Shea. Bi-lingual educational outreach and free clinical breast exams with a nurse practitioner through the “Tina Caring Program.” These services are offered in outlying areas as well as on-going at the Pt. Reyes Medical Clinic.
Teen Impact 323 361-4660 www.teenimpactprogram.com Gives teens and young adults with cancer or a blood disease a chance to make new friends, share life experiences, and participate in fun activities. Support services for parents and siblings. Teens Living with Cancer 585 334-0858 www.teenslivingwithcancer.org Online information, social networking, and resources to help teens living with cancer and their families meet their unique life challenges. The Cancer Survivor’s Guide: The Essential Handbook to Life After Cancer Michael Feuerstein and Patricia Findley New York: Marlowe & Co., 2006
The Complete Revised and Updated Cancer Survival Guide: Everything You Must Know and Where to Go for State-of-the-Art Treatment of the 25 Most Common Forms of Cancer Peter Teeley and Philip Bashe New York: Broadway, 2005 The FORCE Program: The Proven Way to Fight Cancer Through Physical Activity and Exercise Jeffrey Berman, Fran Fleegler, John Hanc, Nancy Brinker New York: Ballantine Books, 2003
The Max Foundation www.themaxfoundation..org Dedicated to helping patients with leukemia and blood-related cancers worldwide by facilitating access to treatment and providing care and support for those who have limited access to resources. Provides information about treatment options, screening, and referrals to local and global resources, emotional and practical support, assistance with access to treatment including drug donations, patient assistance programs, clinical trials, and reimbursement for treatment through local healthcare systems. The Medicine Program 877 694-3893 toll-free Medication assistance The Second Opinion 1200 Gough Street San Francisco, California 94109 415 775-9956 www.thesecondopinion.org Sole purpose is to provide free second opinions to adults in California who have been diagnosed with new or recurring cancer. Relies upon the volunteer efforts of over sixty Board Certified physicians from eight medical disciplines whose experience in cancer treatment practice is critical to the mission of the organization and who work with a variety of recognized medical facilities. Provided by the Regional Cancer Foundation. The Stang Cancer Prevention Center Cookbook: A Complete Nutrition and Lifestyle Plan to Dramatically Lower Your Cancer Risk Laura J. Pensiero, Michael P. Osborne, Susan Oliveria New York: McGraw-Hill, 2004 The Wellness Community 202 659-9709 3276 McNutt, Walnut Creek 94596 925 933-0107 www.thewellnesscommunity.org The largest support program in the U.S. devoted solely to providing free psychological and emotional support to cancer patients and their families. Founded on the breakthrough “Patient Active Concept” conceived by Harold H. Benjamin, Ph.D., founder of The Wellness Community and a nationally recognized authority on the psychological methods cancer patients can use in their fight for recovery. Free emotional support, education, and hope. Through participation in professionally-led support groups, educational workshops, mind-body nutrition and exercise programs, and stress reduction classes, people learn vital tools to gain control, reduce isolation, and restore hope. “Kids Count Too” is a gathering of children and teens whose parents have cancer. The Family Transition Group provides support for bereaved family members. The online community services include three components: free support groups, professionally-led, weekly, password-protected, offered in real time for any person with any type of cancer and for loved ones of people with cancer; a resource library where online visitors can access key cancer resources; and a kitchen and nutrition center which offers resources and information on vitamins, foods, and general nutrition for people before, during, and after treatment. The Wellness Community also collaborates with academic and medical partners to conduct evidence-based research and provide training in the field of psychosocial oncology with the goal of improving outcomes and quality of life for cancer patients, cancer survivors, and the individuals who care for them. The Wellness Community assists individuals affected by cancer at over 100 locations worldwide including 24 U.S.-based and 2 international centers, 73 satellite and off-site programs, and online.
Thyroid Cancer Survivors Association, Inc. 877 588-7904 toll-free www.thyca.org E-mail support groups, a toll-free survivors line, a low-iodine cookbook, newsletters, conferences, and workshops. Active in raising funds for research. Tim and Tom Gullikson Foundation 888-Gullikson toll-free www.gulliksonfoundation.org Awards college scholarships to individuals affected by a brain tumor diagnosis. To Celebrate Life Breast Cancer Foundation P.O. Box 367 Kentfield, California 94914 415 455-5882 www.tocelebratelife.org Raises funds to help people dealing with breast cancer or who have breast health concerns. Supports early detection screening, emotional and educational services, underserved communities, and healing opportunities through events for those living with breast cancer.
UCSF Carol Franc Buck Breast Care Center 1600 Divisadero Street San Francisco, California 94115 415 353-7070 www.ucsfbreastcenter.org A multi-disciplinary breast care center that provides state-of-the-art health care services, extensive psychological support, clinical trial research, and support services. Its mission is to provide innovative and comprehensive breast care that addresses the needs of the whole person.
UCSF Ida and Joseph Friend Cancer Resource Center 1600 Divisadero Street San Francisco, California 415 885-3693 www.cc.ucsf.edu/crc Provides information and treatment options, emotional support, and community resources. Free programs bring patients together, foster community, educate patients about their diagnoses, and give them effective tools to navigate the disease process. Classes in exercise and movement, meditation, guided imagery, a lending library, preparing for surgery, nutrition, support groups for partners, families and friends, gays and lesbians, peer support, spiritual support, appointment planning, smoking cessation, special seminars and events, referrals for individual and family counseling and psychotherapy, and breast prostheses, hats, turbans, wigs, make-up. Ulman Cancer Fund for Young Adults 888 393-3863 toll free 410 964-0202 www.ulmanfund.org Supports, educates, and connects young adults affected by cancer through on-line resources, college scholarships, and advocacy. Us Too International, Inc. 800 808-7866 toll-free 630 795-1002 www.ustoo.org Provides timely and reliable information to educate men newly diagnosed with prostate cancer to enable them to make informed choices regarding treatment. Active advocate for increased funding for early detection, diagnosis, treatment, and research.
U.S. Department of Health and Human Services 877 696-6775 toll-free www.hhs.gov Agency oversees federal health and safety programs, including income assistance, healthcare and insurance programs for children and families. Information on Medicaid, Temporary Assistance for Needy Families (TANF) and other medical and financial programs for low-income individuals and families.
Vietnamese Community Health Project San Francisco, California 415 476-0557 www.healthisgold.org Develops and evaluates public health programs in collaboration with the Vietnamese community throughout the U.S. in the areas of tobacco control, promotion of cancer screening, and hepatitis B immunizations. Vital Options Cancer Network 800 477-7666 toll-free 818 508-5657 www.vitaloptions.org Facilitates a global dialogue by using technology to reach people dealing with cancer. Weekly call-in cancer radio talk show called The Group Room linking callers with other patients, long-term survivors, physicians, researchers, and therapists experienced in working with cancer issues. Volunteer Income Tax Assistance 800 829-1040 toll-free www.irs.gov/individuals A free program of the Internal Revenue Services offers tax help through trained volunteers to people with low and moderate incomes who cannot prepare their own tax returns. Contact the national program to obtain information about local services. Volunteer Legal Services Program 415 982-1600 San Francisco Bay Area, California Connects low-income people living with cancer with volunteer lawyers who are willing to provide free legal assistance with wills, powers of attorney, and insurance issues.
Wall of Hope Breast Cancer Survivors Project 925 736-7100 www.wallofhope.org Exhibit of hundreds of portraits of Californians living with breast cancer is shown in venues throughout the U.S. Newsletter, “The Green Breast Cancer Letter.”Seminars and literature explore environmental contributors to breast and other cancers. WebMD www.webmd.com Consumers can find information on medical conditions, treatments, and drugs, participate in discussions with medical experts, read the latest news in medicine, and share health experiences on this comprehensive website. WebWhispers www.webwhispers.org An international internet support group provides information and support to all persons diagnosed with or treated for cancer that affects the larynx or those who have suffered damage to their vocal cords. Support is directed toward creating understanding, providing educational opportunities, and rehabilitation assistance. We Can Pediatric Brain Tumor Network 310 739-3433 www.wecan.cc Offers information and emotional support to families with children who have brain tumors. Well Spouse Association 800 838-0879 toll-free 732 577-8899 www.wellspouse.org Gives support to partners of chronically ill patients. Provides a monthly newsletter, “Mainstay,” letter-writing support groups, an annual conference, and other regional and weekend meetings. Works to make healthcare professionals and the general public aware of the great difficulties caregivers face every day. What Cancer Survivors Need to Know About Health Insurance Kimberly J. Calder, Karen Pollitz Silver Spring, MD: National Coalition for Cancer Survivorship, 2003 www.canceradvocacy.org/resources/pubs This book sorts through the insurance maze by explaining the many types of insurance, how people living with cancer can get the most out of their coverage, and discussing laws that provide protection for survivors changing jobs. Contact National Coalition for Cancer Survivorship to purchase copy. Available in Spanish. Whistlestop 930 Tamalpais Avenue San Rafael, California 94901 415 456-9062 Congregate meals at the Whistlestop Depot Café at below market prices
Wigs for Kids 440 333-4433 www.wigsforkids.org Provides complimentary, custom-made hairpieces to help children look themselves and live their lives. WomanKind Health Resource Center Saint Mary’s Medical Center 450 Stanyan Street San Francisco, California 94117 415 750-5775 A resource center within Saint Mary’s Hospital. Offers a breast cancer support community and a comprehensive lymphedema program.
Women’s Cancer Network 800 444-4441 toll-free www.wcn.org Developed by the Gynecological Cancer Foundation. Website dedicated to informing women about gynecologic cancer risk factors, diagnosis, treatment, and clinical trials. Women’s Cancer Resource Center 5741 Telegraph Avenue Oakland, California 94609 888 421-7900 toll free 510 420-7900 helpline www.wcrc.org Empowers women to be active and informed consumers and survivors. Provides community for women with cancer and their supporters. Edicates the general community about cancer,. Actively involved in the struggle for a life-affirming, cancer-free society. Especially strives to meet the needs of low-income women, women of color, immigrant, lesbian, older, and disabled women. Multi-lingual lending library. Services include peer-facilitated support groups, including a group for teens who have a parent or guardian with cancer, an information and referral helpline that includes services for Spanish-speaking survivors and for the deaf community, the Sister to Sister program for African-American women, a Latina Services Program, and the Lesbians with Cancer support community. Other programs help low-income women obtain financial assistance and in-home support services. Offers list of free and low-fee therapists throughout the Bay Area experienced in working with people with cancer and their families.
Women’s Health Resource Center 3698 California Street San Francisco, California 94118 415 600-0500 Provides health information and education services. Gynecological Cancer Recovery Program. Operates a boutique with products to cope with hair loss, breast surgery.
Women’s Health Services County of Marin Department of Health and Human Services 361 Third Street, Suite E San Rafael, California 94901 415 507-4019 Full service OB-GYN and reproductive health clinic with day and evening clinics serving all ages. Access to Family Pact and Cancer Detection services as well as the Breast and Cervical Cancer Treatment Program.
WomenStories 800 775-5790 toll-free 716 873-3689 www.womenstories.org A series of videos in which women living with breast cancer offer emotional support and advice. Working It Out: Your Employment Rights as a Cancer Survivor Barbara Hoffman Silver Spring, MD: National Coalition for Cancer Survivorship, 2003 Y-ME Breast Cancer Organization 800 221-2141 toll-free hotline 800 986-9505 toll-free Spanish 312 986-8338 www.y-me.org Provides information and support to anyone who has been touched by breast cancer. Offers a national 24-hour hotline, early detection workshops, peer support groups for survivors as well as spouses of survivors, and many local chapters. Founded by two breast cancer patients in 1978 when they realized their needs could best be met by women who had also experienced breast cancer. Yoga Bear San Francisco, California www.yogabear.org Yoga Bear is a non-profit organization dedicated to providing cancer survivors with more opprotunities for wellness and healing though the practice of yoga. Yoga Bear offers cancer survivors free passes to local yoga studios.
Yoga for Cancer Bay Club Marin 220 Town Center Corte Madera, California Antonio Sausys leads free yoga classes for club members and non-members who are cancer survivors, whether in treatment as well as those who have been cancer-free for years. Antonio draws elments form his knowledge of Yoga and his personal background as a psychotherapist to integrate techniques. thoughtful insights, and humor in a very dyanamic class intended to provide practitioners with tools to better understand and cope with living with cancer.
Yoga-To-You Marin County, California www.yoga-to-you.com Melanie Hahn seeks to share the ancient wisdom found in yoga and ancient healing movement forms with idividuals and groups in their private homes or in assisted lviing centers, nursing homes, independent living sites and other residential care facilities for older adults.
Young Cancer Spouses www.youngcancerspouses.com Social networking forum and bulletin boards bring together young spouses of adults with cancer to share information, support, and experiences. Young Survival Coalition 645 257-3000 www.youngsurvival.org An international network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy, and awareness, YSC seeks to educate the medical, research, breast cancer, and legislative communities and to persuade them to address breast cancer in women 40 years and under. Yul Brynner Head and Neck Cancer Foundation 843 792-6624 www.yulbrynnerfoundation.org Mission is to provide support to head and neck cancer patients, to educate children and adults about the disease process, treatment, and prevention of head and neck cancer, and to support ongoing research in this oncology. Working Against Cancer Scholarship Program 626 914-2914 www.workingagainstcancer.org Assists young cancer survivors (30 years and younger) by providing awards toward academic and vocational education. A candidate must be a cancer survivor or recently diagnosed with cancer but does not need to be currently receiving treatment to qualify. Zen Hospice of San Francisco 273 Page Street San Francisco, California 94102 415 863-2910 www.zenhouse.org Dedicated to the care of people approaching death and to increasing our understanding of our own impermanence.
Zero Breast Cancer 4340 Redwood Highway, Suite C400 San Rafael, California 94903 415 507-1949 www.zerobreastcancer.org Mission is to find the causes of breast cancer through community participation in research projects. |