American Brain Tumor Association
773 577 8750
800 886 2282
The mission of the American Brain Tumor Association is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. We do this through interactions and engagements with brain tumor patients and their families, collaborations with allied groups and organizations, and the funding of brain tumor research.
Founded in 1973, the American Brain Tumor Association was the first and is now the only national organization committed to funding brain tumor research and providing information, support and educational resources for all age groups and all tumor types. For 40 years, the ABTA has been providing comprehensive resources that support the complex needs of brain tumor patients and caregivers, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnosis, treatment and care.
www.abta.org
Brain Tumor Foundation
212 265 2401
The Brain Tumor Foundation (BTF) guides and supports patients and families during the turbulent times when their lives are touched by a brain tumor.
Bryan’s Dream Foundation
Bryan’s Dream Foundation is a non-profit organization established in 2006 in memory of Bryan Timothy Opremcak. The purpose of the foundation is to fulfill Bryan’s dream by providing hope and financial support to children with brain tumors as well as their families and to ensure that no child’s life is ended prematurely.
Butterfly Fund
The Pediatric Brain Tumor Foundation’s Butterfly Fund provides emergency financial assistance to families of children in treatment at partnering medical facilities.
Childhood brain tumor treatment regimens are long and intense, requiring many parents to take unpaid leave from work to focus on their child and adding incredible levels of emotional stress on the entire family.
Out-of-pocket expenses, such as housing, transportation and groceries add up, and professional counseling, long-term rehabilitation, and other services often are not covered by insurance. These financial hardships pose serious barriers to patient care and can have devastasting effects on all family members.
The Butterfly Fund covers the following types of expenses:
- Rent and mortgage payments, utility bills (electric, gas, and water), car loan and car insurance payments
- Travel expenses associated with treatment away from home
- Items not covered by insurance or other means such as special medications, long-term rehabilitation services, hearing aids, wigs and prosthetic devices, home health services, etc.
- Professional counseling services that best support the family’s need: individual counseling, couples counseling, family counseling, and grief counseling
- Funeral expenses
Childhood Brain Tumor Foundation
301 515 2900
877 217 4166
Children’s Brain Tumor Foundation
212 448 9494
Cory’s Crusaders
From assistance with medical bills to helping make a child’s dream come true with a special gift or trip, our goal is to assist in any way a family sees as their greatest area of need. As parents who have dealt with the daily financial challenges that go along with fighting cancer, help is needed in many areas. We help these families with day to day expenses that many may not think of. Gas to get to and from appointments, parking and tolls, child care for their other children, etc. A family may need help with insurance payments, utilities, food or mortgage payments.
Darren Daulton Foundation
The Darren Daulton Foundation is committed to providing financial assistance to those who suffer from brain cancer and brain tumors.
Friends4Michael
Provides supplementary financial assistance to families, guardians or caregivers with financial needs resulting from expenses associated with the child’s brain tumor treatment. This program covers specific non-medical costs related to a primary brain tumor diagnosis. Direct medical expenses will not be covered. The Family Assistance Committee (FAC) within the Freinds4Michael (F4M) Foundation processes all requests for the Foundation. Grants of up to $500 per family, guardian or caregiver.
Glenn Garcelon Foundation
The Glenn Garcelon Foundation exists to empower and support brain tumor patients and their families by providing financial assistance to those who meet our criteria.
IronMattFamily Assistance Program
The IronMatt Family Assistance Program is available to qualified families in need assistance who have a child undergoing treatment for a Brain or Central Nervous System (CNS) cancer. The IronMatt Family Assistance Program sets our Foundation apart. We are one of only a few foundations that gives direct financial assistance to families regardless of their socio-economic status, the type of brain tumor (malignant or benign) or the progress of the disease.
Mission4Maureen
Mission4Maureen was borne of the loss of a daughter, a sister, a wife and a friend, and its sole and single purpose is to provide support and assistance for victims – and their families – of brain cancer.
While science seeks a cure, society demands its due. Mortgages, utilities and basic living expenses need to be met, and many brain cancer patients simply do not have the wherewithal to meet those obligations. Mission4Maureen, committed to Maureen’s belief that “everyone can do something”, assists qualifying brain cancer patients with everyday expenses. Assistance may come in the form of rent or mortgage payments, help with the electric or gas bill, or even gift cards to a local supermarket to help with the cost of food and medicines. This simple goal is an ambitious challenge for any charity. How is this goal accomplished? One unsuspecting, unprepared brain cancer victim at a time. In her name, this foundation accepts and embraces Maureen’s challenge. “No one can do everything, but everyone can do something.”
National Brain Tumor Society
617-924-9997
The NBTS Personalized Support and Navigation team responds to outreach from patients with a brain tumor and care partners with quality, unbiased information, resources, support programs, and services. We also assist in meeting other brain tumor-related needs of patients and care partners.
While NBTS does not provide medical advice, we empower our community members with key tools, information, and opportunities for their brain tumor experience while being able to make more informed decisions about their care.
The NBTS Personalized Support and Navigation team responds to outreach from patients with a brain tumor and care partners with quality, unbiased information, resources, support programs, and services. We also assist in meeting other brain tumor-related needs of patients and care partners.
While NBTS does not provide medical advice, we empower our community members with key tools, information, and opportunities for their brain tumor experience while being able to make more informed decisions about their care.
To connect with our Personalized Support and Navigation team, email [email protected].
Our helpful team of patient navigators and advocates will respond to your questions and provide you with the personalized information and support you need. Depending on your inquiry, you will connect with one of our three team members.
Brain Tumor Support Conversations
The Brain Tumor Support Conversations are an online support group run by the brain tumor community for the brain tumor community. This group is attended and run by patients and care partners who have had firsthand experience with the challenges and effects of a brain tumor diagnosis.
This support group is a welcoming space where patients and loved ones can have honest, supportive discussions about the feelings and emotions that accompany any aspect of the brain tumor experience.
These online support group conversations are held on the third Sunday of each month from 7-8 pm ET/4-5 pm PT. After you sign up with your email, you will receive a confirmation email and it will allow us to stay in touch with you. For more information, see our privacy policy.
Facilitators
Co-founders and volunteer facilitators Adam Hayden and Lisa O’Leary host regular, open, and honest online support groups for the brain tumor community to connect with each other on topics that matter to them. Adam and Lisa recently discussed ways to connect with the brain tumor community and what to expect in a Brain Tumor Support Conversations session in an NBTS blog post.
Pediatric Brain Tumor Foundation
828-665-6891
800-253-6530
Smiles for Sophie Forever
From the time of diagnosis until Sophie’s death, the heart-wrenching emotional strain was compounded by the financial burden that accompanied Sophie’s care and treatment. Marc and Emily realized how fortunate they were to have financial support which allowed them to do things for Sophie which they would not have otherwise been able to do. Consequently, providing financial assistance to families is one part of the Smiles For Sophie Forever mission.
Leave a Reply