Hope is truly the best of things,
and Twisted Pink continues to fuel my hope
and the hope of all of us living with metastatic breast cancer.
Jennifer Alderman
September 29, 1975 – May 28, 2021
Mission
Provide hope and connection to people living with metastatic breast cancer by funding bold breakthroughs in research and awareness of the disease.
Thank you! Thank you for Twisted Pink.
What a truly great organization you have created.
Unfortunately, many people don’t understand the true gravity
of what a diagnosis of metastatic disease really means.
As you know, I lost my wife at the young age of 45.
She was diagnosed at 33.
Twelve years.
That’s an eternity.
Those twelve years brought many great memories.
Those twelve years mean my 3 kiddos will always remember their mother.
Those twelve years mean they are who they are today and tomorrow
because their mother helped mold them
into compassionate, well-rounded, and,
for lack of a better term,
good human beings.
If it wasn’t for an organization like Twisted Pink,
Jenny may not have lived anywhere close to another 12 years.
A good part of her perseverance was her strong will,
her determination,
and her love of her children.
However, without dollars being funded towards research
which is earmarked for metastatic disease,
Jenny and many other women,
and men like her, would have no hope.
They would have no options
to give them the opportunity
to allow their children the privilege
of knowing who they are,
of allowing them the ability to live another day.
Thank you!
~ Dr. Robert Alderman
What is Metastatic Breast Cancer?
Metastatic breast cancer (MBC) is different from early stage breast cancer. Once breast cancer moves from the breast to other organs, it is considered stage IV and there is no cure. People who are diagnosed with MBC will remain in treatment for the remainder of their lives.
When breast cancer metastasizes, or travels from the breast to other organs, it most commonly travels to the brain, bone, liver, or lungs. Although some women and men with MBC live many years due to improving treatments, it is an incurable disease.
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It is estimated that 168,000 people in the US are living with MBC.
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MBC can be treated but not cured.
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The median survival rate after a diagnosis of MBC is 3 years.
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20-30% of people diagnosed with early stage breast cancer will experience a recurrence of MBC at some point in their lifetime.
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Up to 10% of people diagnosed with breast cancer will receive an initial diagnosis of MBC.
Twisted Pink has been funding bold breakthroughs in research since 2015 to help advance science and provide new treatment options along with hope for people living with MBC. Twisted Pink also aims to provide education and awareness about MBC, which is widely misunderstood.
Insider’s Guide to Metastatic Breast Cancer
The author, Anne Loeser, herself a metastatic breast cancer patient, created this book to help patients and their loved ones cope with a complex and difficult disease. The Guide provides information about approved therapies in the U.S., Canada, Europe, and Australia, as well as scientific studies, cutting-edge research, clinical trials, and palliative care.
The adage that “knowledge is power” is particularly compelling when dealing with issues impacting survival and quality of life. Consequently, this fact-based handbook is a must-read for every patient contending with treatment decisions and side effects.
The Guide is also available on Amazon in eBook and paperback here.
Box of Hope
Twisted Pink has been shipping Boxes of Hope to people living with breast cancer since 2021 in collaboration with the United Breast Cancer Foundation.
Each Box is carefully packaged by volunteers and staff at Twisted Pink, many of whom are breast cancer survivors themselves. Each Box of Hope contains breast cancer facts, resources, health and beauty items, and gifts of comfort that will bring hope and provide support to people diagnosed with breast cancer.
If you are currently in active treatment for breast cancer, you may request a Box of Hope at no cost. We define active treatment as being diagnosed at any stage of breast cancer within the last 6 months or within the first year of chemotherapy or radiation treatments. If you are living with stage IV (metastatic) breast cancer, we consider you in active treatment.
Boxes are shipped within the USA only. We cannot ship to other countries at this time.
Please note: You will be asked to provide proof of diagnosis including date of diagnosis upon completion of this form. A box can only be shipped after we receive this documentation.
ACCEPTS VIRTUAL CLIENTS
Caroline Johnson
Founder and Executive Director
[email protected]
[email protected]
www. twisted pink.org
502 727 1136
8016 Vinecrest Avenue #2,
Louisville, Kentucky 40222
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